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NEWS
Read the latest in ME news and campaigns—never miss a beat!
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Email Doctor Unger about the Misinformation at CDC
People with ME deserve accurate ME/CFS education from the Centers for Disease Control, not discredited recommendations for CBT and GET.
May 27, 20223 min read


#MillionsMissing: Videos Created by our Amazing Community
This year’s #MillionsMissing, our community created some amazing videos that we are privileged to highlight. This is just a small sampling of the amazing videos that were shared with us. It would be impossible to include them all, but we thank you all for sharing!
May 26, 20221 min read


#MillionsMissing MAY 2022 Wrap Up
Thank you for illustrating our common thread so that our governments and institutions can respond to this health crisis.
May 25, 20225 min read


Exciting news about Mayo Clinic!
We’ve got some very exciting news this week!Clinicians working at the Long COVID clinic at Mayo Clinic’s campus in Rochester, Minnesota met with #MEAction to discuss treatment, research and improved community engagement for people with ME! They reached out to us because they were interested in engaging with a national patient-led organization with strong community ties.Mayo Clinic is a leader in clinical care in the United States. Many healthcare providers in the US and beyon
May 17, 20221 min read


Celebrating Postcards to Doctors: Final Report
We’re incredibly pleased to announce that we not only met but exceeded our initial goal of sending 6,000 postcards out into the world!
Jan 28, 20204 min read
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