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NEWS
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#MEAction’s Pacing Narrative Data Gets Published in First Paper + MORE Science updates!
We are excited to share some promising updates about the scientific work #MEAction is leading to advance the field of ME/CFS research.
Jul 22, 20253 min read
Severe ME Artists Project 2025
Learn more about this year’s project
Jul 10, 20254 min read
Press Release: UNC Closes its Long COVID Clinic – the Only One in the State
The sole Long COVID clinic of North Carolina closed last week after its federal funding ran out.
Jun 23, 20252 min read
Minnesota’s Long COVID Funding Saved from Elimination
The Minnesota Department of Health's Long COVID program has been saved from elimination!
Jun 11, 20253 min read
Sick and Disabled People Protest Medicaid Bill at Capitol
Sick and disabled people are protesting today, Monday, May 12th at the Capitol to tell Congress that forcing chronically ill people to work in order to keep their Medicaid healthcare will only make our country sicker and more reliant on government services.
May 12, 20254 min read
Research Roadmap Petition
We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.
May 7, 20251 min read
Share This SOS Image On Your Socials
Share this message about #MillionsMissing with your own networks.
Apr 28, 20251 min read
Millions Missing Scotland 2025: Red alert for ME
#MEAction Scotland will be outside Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to act on its promises.
Apr 27, 20255 min read
#MEAction: Congress Is Hearing from Us
#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.
Apr 23, 20252 min read
#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai
#MEAction Georgia's Maggie Boxey gave a TEDx talk about her experience as a person with ME.
Apr 21, 20254 min read
SOS: Save our Science
It’s time to send out our SOS signal if we want to have funded research.
Apr 11, 20256 min read
Why We’re Sending out an SOS this #MillionsMissing
On May 12th, we're sending out an SOS to Congress to Save our Support Systems, our Science, and our Society.
Apr 8, 20252 min read
Writers Guild Initiative Writing Workshops: Apply Today
#MEAction is excited to announce we are partnering with the Writers Guild Initiative again to offer creative writing workshops for people with ME and Long COVID!
Apr 4, 20252 min read
Virtual Interview + Q&A with Stuart Murdoch
Stuart Murdoch (Belle and Sabastian) will be interviewed by #MEAction Minnesota’s leader, Terri L Wilder, about his recently released novel, Nobody’s Empire.
Apr 3, 20253 min read
#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2025, #MEAction is sending out an SOS.
Apr 2, 20252 min read
Women’s History Month
I have been honored as I have watched our volunteers share what makes them powerful and who they see power in for Women’s History Month. I hope you will look back on what has been shared so far!
Mar 27, 20253 min read
Trump Cuts Funding for ME/CFS Centers at Columbia University
This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research Centers focused on ME/CFS.
Mar 20, 20252 min read
Volunteer’s Bakery Spreads ME Awareness + Raises Funds
#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.
Mar 19, 20254 min read
Long COVID Awareness Day
Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.
Mar 14, 20252 min read
Why I Joined a Stand Up for Science Rally
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Mar 12, 20252 min read
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