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MEAction Scotland publishes 2024 Impact Statement
Read #MEAction Scotland's 2024 Impact Statement.
Mar 121 min read


Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.
Mar 62 min read


Town Hall Summary
Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that will affect the disability and chronic illness communities the most.
Feb 282 min read


#MEAction’s Medical Flashcards Featured by CDC!
#MEAction's Anki Flashcards have been recommended by the CDCon its new ME/CFS page for medical students!
Feb 201 min read
Cochrane Collaboration Cancels Independent Analysis of Exercise Therapy Review for ME/CFS
#MEAction is raising the alarm about Cochrane Collaboration's sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for ME/CFS.
Jan 244 min read


The Year Ahead
As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you!
Jan 235 min read


#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing
Back in September, #MEAction Georgia partnered with the CDC and Emory School of Nursing to host Voice of the Patient: A Panel Discussion with #MEAction Georgia.
Jan 84 min read


Home Test To Treat – Findings Summary
#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program!
Jan 71 min read


We Are Fighting for YOU Everyday! Here’s How…
#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going!
Dec 17, 20242 min read


Why You Should Gift to #MEAction this Season
As #MEAction prepares for the year ahead, I’m thrilled to share with you a few highlights from the incredible advocacy projects our staff has undertaken this past year.
Dec 12, 20243 min read


Support Keeping Telehealth – Take Action Today!
Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st!
Dec 11, 20242 min read


#MEAction Scotland Volunteers in Scottish Parliament
Volunteers from #MEAction Scotland and Long Covid Scotland talked to over 60 MSPs at an Information Stall in the Scottish Parliament.
Dec 6, 20243 min read


#MEAction Scotland Publishes Refreshed Strategic Priorities
#MEAction Scotland has refreshed and updated its strategic priorities for the period 2024-2026.
Nov 1, 20241 min read


Urgent Action Needed: Demand NIH Fund the ME/CFS Research Roadmap!
#MEAction is sending an urgent letter to NIH Director, Dr. Monica Bertagnolli, demanding that the NIH fund the ME/CFS Research Roadmap.
Oct 10, 20240 min read
#MEAction UK: Postcards to Doctors for #MillionsMissing 2024
This global #MEAction initiative aims to raise awareness among medical professionals of the challenges faced by ME/CFS and emphasise the need for healthcare education about this condition.
Sep 26, 20242 min read


#MEAction UK's email/letter to Andrew Gwynne MP
To: Andrew Gwynne, Under Secretary of State for Public Health and Prevention Subject: Treatment of Very Severe MEÂ Email:...
Sep 16, 20243 min read


#TeachMETreatME: We Can’t Believe These Numbers
We tallied up some numbers from our #TeachME, TreatME campaign to educate clinicians and medical students about ME, and the results are fantastic!
Sep 4, 20243 min read


#MEAction Awarded 3-Year Grant by Minnesota Department of Health Long COVID Program
#MEAction has just been awarded a 3-year grant by the Long COVID Program of the Minnesota Department of Health (MDH) to address the impacts of Long COVID, ME/CFS, and related conditions.
Jul 30, 20242 min read


Questions to Ask Prospective MPs About ME/CFS
With the upcoming UK election, It’s important that candidates are made aware of the challenges facing people with ME and Long COVID.
Jun 4, 20242 min read


#MEAction Scotland publishes impact statement
See #MEAction Scotland's impact statement for the period between 3/2022 and 5/2023.
May 23, 20241 min read
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