NEWS

On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh.

We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.

Share this message about #MillionsMissing with your own networks.

#MEAction Scotland will be outside Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to act on its promises.

It’s time to send out our SOS signal if we want to have funded research.

For #MillionsMissing 2025, #MEAction is sending out an SOS.

The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.

Where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions: we still have a long road ahead of us.

#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.

Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.

Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.

Read #MEAction Scotland's 2024 Impact Statement.

#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.

Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that will affect the disability and chronic illness communities the most.

#MEAction's Anki Flashcards have been recommended by the CDCon its new ME/CFS page for medical students!

#MEAction is raising the alarm about Cochrane Collaboration's sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for ME/CFS.

As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you!

Back in September, #MEAction Georgia partnered with the CDC and Emory School of Nursing to host Voice of the Patient: A Panel Discussion with #MEAction Georgia.

#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program!

#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going!