top of page
NEWS
Read the latest in ME news and campaigns—never miss a beat!
Search
All News


Volunteer’s Bakery Spreads ME Awareness + Raises Funds
#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.
Mar 19, 20254 min read


Long COVID Awareness Day
Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.
Mar 14, 20252 min read


Why I Joined a Stand Up for Science Rally
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Mar 12, 20252 min read


MEAction Scotland publishes 2024 Impact Statement
Read #MEAction Scotland's 2024 Impact Statement.
Mar 12, 20251 min read


Pillow Crafters Showcase: Healing Themes—The Wildflower Process
Experience the Pillow Crafters Showcase: Healing Themes—The Wildflower Process, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis.
Mar 6, 20251 min read


Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.
Mar 6, 20252 min read


#MEAction Celebrates Powerful Women
#MEAction acknowledges and celebrates the amazing women in our community.
Mar 5, 20255 min read


Town Hall Summary
Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that will affect the disability and chronic illness communities the most.
Feb 28, 20252 min read


#MEAction’s Medical Flashcards Featured by CDC!
#MEAction's Anki Flashcards have been recommended by the CDCon its new ME/CFS page for medical students!
Feb 20, 20251 min read
Press Release: Cochrane Library Faces Backlash Over ME/CFS Review Cancellation
Cochrane Library has abandoned an independent analysis of its 2019 review of exercise therapy for ME/CFS, and altered the date to appear current when it's sources are actually 10 years old or more.
Jan 31, 20253 min read


A Heart-filled Very Modified Movement Class on 2/14
Join #MEAction for a heart-filled, very modified movement class of the year on Friday, February 14th at 11am PST/2pm EST/7pm GMT.
Jan 30, 20253 min read
Cochrane Collaboration Cancels Independent Analysis of Exercise Therapy Review for ME/CFS
#MEAction is raising the alarm about Cochrane Collaboration's sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for ME/CFS.
Jan 24, 20254 min read


The Year Ahead
As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you!
Jan 23, 20255 min read


#NotJustFatigue Video Series: Interview with Creator Elizabeth Ansell
Over the past year, the #NotJustFatigue website released a 10-part, documentary-style, short-form video series on different aspects involved in living with ME.
Jan 13, 20253 min read


#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing
Back in September, #MEAction Georgia partnered with the CDC and Emory School of Nursing to host Voice of the Patient: A Panel Discussion with #MEAction Georgia.
Jan 8, 20254 min read


Home Test To Treat – Findings Summary
#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program!
Jan 7, 20251 min read


Exploring the Galaxies: Day In the Life of Our Community Engagement & Social Media Manager
We are now entering our 3rd #MEAction galaxy tour! Enjoy the journey as we share a typical day in the life of our Community Engagement and Social Media Manager, Holly Latham!
Dec 18, 20244 min read


We Are Fighting for YOU Everyday! Here’s How…
#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going!
Dec 17, 20242 min read
Exploring the Galaxies: Day In the Life of Our Director U.S Advocacy Director
We only have 17 days left for our End Of Year Fundraiser!
Dec 13, 20244 min read


Why You Should Gift to #MEAction this Season
As #MEAction prepares for the year ahead, I’m thrilled to share with you a few highlights from the incredible advocacy projects our staff has undertaken this past year.
Dec 12, 20243 min read
bottom of page





