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Millions Missing Scotland 2025: Red alert for ME
#MEAction Scotland will be outside Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to act on its promises.
Apr 27, 20255 min read


#MEAction: Congress Is Hearing from Us
#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.
Apr 23, 20252 min read


#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai
#MEAction Georgia's Maggie Boxey gave a TEDx talk about her experience as a person with ME.
Apr 21, 20254 min read


SOS: Save our Science
It’s time to send out our SOS signal if we want to have funded research.
Apr 11, 20256 min read


Why We’re Sending out an SOS this #MillionsMissing
On May 12th, we're sending out an SOS to Congress to Save our Support Systems, our Science, and our Society.
Apr 8, 20252 min read


Writers Guild Initiative Writing Workshops: Apply Today
#MEAction is excited to announce we are partnering with the Writers Guild Initiative again to offer creative writing workshops for people with ME and Long COVID!
Apr 4, 20252 min read


Virtual Interview + Q&A with Stuart Murdoch
Stuart Murdoch (Belle and Sabastian) will be interviewed by #MEAction Minnesota’s leader, Terri L Wilder, about his recently released novel, Nobody’s Empire.
Apr 3, 20253 min read


#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2025, #MEAction is sending out an SOS.
Apr 2, 20252 min read


White House Halts Funding for Long COVID Grants
The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.
Mar 27, 20252 min read


Women’s History Month
I have been honored as I have watched our volunteers share what makes them powerful and who they see power in for Women’s History Month. I hope you will look back on what has been shared so far!
Mar 27, 20253 min read


Join the Fight for Medicaid & Telehealth
Where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions: we still have a long road ahead of us.
Mar 26, 20252 min read


Office of Long COVID at HHS Closing
Read the statement from Ian Simon, the head of the Long COVID Office at Department of Health and Human Services.
Mar 25, 20252 min read


Trump Cuts Funding for ME/CFS Centers at Columbia University
This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research Centers focused on ME/CFS.
Mar 20, 20252 min read


Volunteer’s Bakery Spreads ME Awareness + Raises Funds
#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.
Mar 19, 20254 min read


Long COVID Awareness Day
Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.
Mar 14, 20252 min read


Why I Joined a Stand Up for Science Rally
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Mar 12, 20252 min read


MEAction Scotland publishes 2024 Impact Statement
Read #MEAction Scotland's 2024 Impact Statement.
Mar 12, 20251 min read


Pillow Crafters Showcase: Healing Themes—The Wildflower Process
Experience the Pillow Crafters Showcase: Healing Themes—The Wildflower Process, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis.
Mar 6, 20251 min read


Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.
Mar 6, 20252 min read


#MEAction Celebrates Powerful Women
#MEAction acknowledges and celebrates the amazing women in our community.
Mar 5, 20255 min read
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