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NEWS
Read the latest in ME news and campaigns—never miss a beat!
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Volunteer’s Bakery Spreads ME Awareness + Raises Funds
#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.
Mar 194 min read


Why I Joined a Stand Up for Science Rally
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Mar 122 min read


Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.
Mar 62 min read


Town Hall Summary
Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that will affect the disability and chronic illness communities the most.
Feb 282 min read


#MEAction’s Medical Flashcards Featured by CDC!
#MEAction's Anki Flashcards have been recommended by the CDCon its new ME/CFS page for medical students!
Feb 201 min read
Press Release: Cochrane Library Faces Backlash Over ME/CFS Review Cancellation
Cochrane Library has abandoned an independent analysis of its 2019 review of exercise therapy for ME/CFS, and altered the date to appear current when it's sources are actually 10 years old or more.
Jan 313 min read


#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing
Back in September, #MEAction Georgia partnered with the CDC and Emory School of Nursing to host Voice of the Patient: A Panel Discussion with #MEAction Georgia.
Jan 84 min read


Home Test To Treat – Findings Summary
#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program!
Jan 71 min read


Exploring the Galaxies: Day In the Life of Our Community Engagement & Social Media Manager
We are now entering our 3rd #MEAction galaxy tour! Enjoy the journey as we share a typical day in the life of our Community Engagement and Social Media Manager, Holly Latham!
Dec 18, 20244 min read


We Are Fighting for YOU Everyday! Here’s How…
#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going!
Dec 17, 20242 min read
Exploring the Galaxies: Day In the Life of Our Director U.S Advocacy Director
We only have 17 days left for our End Of Year Fundraiser!
Dec 13, 20244 min read


Support Keeping Telehealth – Take Action Today!
Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st!
Dec 11, 20242 min read


Exploring the Galaxies: Day in the Life of Activist & Volunteer Coordinator
Read about a day in the life of our Activist & Volunteer Coordinator, Shalida Dobbins!
Dec 5, 20243 min read


#MEAction Gives Thanks
We have come to the time of year where we focus on what we are thankful for and what has made a difference in our lives.
Nov 27, 20242 min read


#MEAction & Mayo Clinic Projects Continue - New Grant Awarded
#MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by STTI.
Nov 18, 20243 min read


You're Invited: The Beth Mazur Innovation Prize Fundraiser
You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST.
Nov 1, 20241 min read


Urgent Action Needed: Demand NIH Fund the ME/CFS Research Roadmap!
#MEAction is sending an urgent letter to NIH Director, Dr. Monica Bertagnolli, demanding that the NIH fund the ME/CFS Research Roadmap.
Oct 10, 20240 min read


Submit Long COVID Drug Recommendations to RECOVER-TLC!
RECOVER TLC has opened the RECOVER-TLC Intervention Information Request Form, where you can make suggestions about which drugs and other interventions to trial!
Oct 7, 20241 min read


The RECOVER-TLC: The Path Forward
I had the privilege of attending the RECOVER-TLC kick-off meeting while Jaime Seltzer represented the needs of the ME community in a panel discussion.
Sep 26, 20244 min read


#TeachMETreatME: We Can’t Believe These Numbers
We tallied up some numbers from our #TeachME, TreatME campaign to educate clinicians and medical students about ME, and the results are fantastic!
Sep 4, 20243 min read
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