top of page
NEWS
Read the latest in ME news and campaigns—never miss a beat!
Search


White House Halts Funding for Long COVID Grants
The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.
Mar 27, 20252 min read


Women’s History Month
I have been honored as I have watched our volunteers share what makes them powerful and who they see power in for Women’s History Month. I hope you will look back on what has been shared so far!
Mar 27, 20253 min read


Office of Long COVID at HHS Closing
Read the statement from Ian Simon, the head of the Long COVID Office at Department of Health and Human Services.
Mar 25, 20252 min read


Trump Cuts Funding for ME/CFS Centers at Columbia University
This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research Centers focused on ME/CFS.
Mar 20, 20252 min read


Volunteer’s Bakery Spreads ME Awareness + Raises Funds
#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.
Mar 19, 20254 min read


Why I Joined a Stand Up for Science Rally
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Mar 12, 20252 min read


Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.
Mar 6, 20252 min read


Town Hall Summary
Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that will affect the disability and chronic illness communities the most.
Feb 28, 20252 min read


#MEAction’s Medical Flashcards Featured by CDC!
#MEAction's Anki Flashcards have been recommended by the CDCon its new ME/CFS page for medical students!
Feb 20, 20251 min read
Press Release: Cochrane Library Faces Backlash Over ME/CFS Review Cancellation
Cochrane Library has abandoned an independent analysis of its 2019 review of exercise therapy for ME/CFS, and altered the date to appear current when it's sources are actually 10 years old or more.
Jan 31, 20253 min read


#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing
Back in September, #MEAction Georgia partnered with the CDC and Emory School of Nursing to host Voice of the Patient: A Panel Discussion with #MEAction Georgia.
Jan 8, 20254 min read


Home Test To Treat – Findings Summary
#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program!
Jan 7, 20251 min read


Exploring the Galaxies: Day In the Life of Our Community Engagement & Social Media Manager
We are now entering our 3rd #MEAction galaxy tour! Enjoy the journey as we share a typical day in the life of our Community Engagement and Social Media Manager, Holly Latham!
Dec 18, 20244 min read


We Are Fighting for YOU Everyday! Here’s How…
#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going!
Dec 17, 20242 min read
Exploring the Galaxies: Day In the Life of Our Director U.S Advocacy Director
We only have 17 days left for our End Of Year Fundraiser!
Dec 13, 20244 min read


Support Keeping Telehealth – Take Action Today!
Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st!
Dec 11, 20242 min read


Exploring the Galaxies: Day in the Life of Activist & Volunteer Coordinator
Read about a day in the life of our Activist & Volunteer Coordinator, Shalida Dobbins!
Dec 5, 20243 min read


#MEAction Gives Thanks
We have come to the time of year where we focus on what we are thankful for and what has made a difference in our lives.
Nov 27, 20242 min read


#MEAction & Mayo Clinic Projects Continue - New Grant Awarded
#MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by STTI.
Nov 18, 20243 min read


You're Invited: The Beth Mazur Innovation Prize Fundraiser
You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST.
Nov 1, 20241 min read
bottom of page





