NEWS

Experience the Pillow Crafters Showcase: Healing Themes—The Wildflower Process, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis.

Cochrane Library has abandoned an independent analysis of its 2019 review of exercise therapy for ME/CFS, and altered the date to appear current when it's sources are actually 10 years old or more.

Earlier in the year, we first started working on revamping our global directory at #MEAction, and we’re pleased and proud to debut the new tool today!Ollie, a volunteer with #MEAction, joined me in April to implement some much-needed changes. We worked together on the Directory, meeting every other week, for several months– making sure it did what we needed to do, and delivered a polished look. Ollie and I are incredibly excited to be able to settle the Directory into its new

Welcome to the final #FacetsOfME for 2022, where we focus on centering ME during the holidays!

It has been over a year since the COVID-19 vaccine became available, and a subset of people with myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) are reporting adverse effects from getting vaccines and boosters from all manufacturers. There are also rare reports of people without pre-existing conditions developing Long COVID and ME/CFS symptoms after getting a COVID vaccine, and we suspect the same underlying immunological response is at play.Vaccines save lives

Check out these tips on traveling with ME in this month's #FacetsofME feature.

Learn more about temperature dysregulation in this month's #FacetsofME feature.

People with ME deserve accurate ME/CFS education from the Centers for Disease Control, not discredited recommendations for CBT and GET.

This year’s #MillionsMissing, our community created some amazing videos that we are privileged to highlight. This is just a small sampling of the amazing videos that were shared with us. It would be impossible to include them all, but we thank you all for sharing!

Thank you for illustrating our common thread so that our governments and institutions can respond to this health crisis.

We’ve got some very exciting news this week!Clinicians working at the Long COVID clinic at Mayo Clinic’s campus in Rochester, Minnesota met with #MEAction to discuss treatment, research and improved community engagement for people with ME! They reached out to us because they were interested in engaging with a national patient-led organization with strong community ties.Mayo Clinic is a leader in clinical care in the United States. Many healthcare providers in the US and beyon

We are thrilled to announce that Chimére Smith and Terri Wilder will be joining #MEAction as consultants to execute a new volunteer leadership training program funded by the Ford Foundation! We are so thrilled that we will be able to expand our volunteer programs to include robust training and provide fulfilling roles and opportunities for anyone who wants to work with us, become an activist with us, or provide support for a growing community. We are so privileged to have Chi

Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships.

Learn more about cognitive dysfunction in this months #FacetsofME feature.

When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).

When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).