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Pillow Crafters Showcase: Healing Themes—The Wildflower Process
Experience the Pillow Crafters Showcase: Healing Themes—The Wildflower Process, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis.
Mar 6, 20251 min read
Press Release: Cochrane Library Faces Backlash Over ME/CFS Review Cancellation
Cochrane Library has abandoned an independent analysis of its 2019 review of exercise therapy for ME/CFS, and altered the date to appear current when it's sources are actually 10 years old or more.
Jan 31, 20253 min read


Facets of ME: Centering ME During the Holidays
Welcome to the final #FacetsOfME for 2022, where we focus on centering ME during the holidays!
Dec 8, 202216 min read


Protecting the Most Vulnerable: Complexities of Vaccines and Chronic Illness
It has been over a year since the COVID-19 vaccine became available, and a subset of people with myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) are reporting adverse effects from getting vaccines and boosters from all manufacturers. There are also rare reports of people without pre-existing conditions developing Long COVID and ME/CFS symptoms after getting a COVID vaccine, and we suspect the same underlying immunological response is at play.Vaccines save lives
Sep 1, 202210 min read


Facets of ME: Travel Tips
Check out these tips on traveling with ME in this month's #FacetsofME feature.
Aug 26, 202214 min read


Facets of ME: Temperature Dysregulation
Learn more about temperature dysregulation in this month's #FacetsofME feature.
Jun 23, 20227 min read


Email Doctor Unger about the Misinformation at CDC
People with ME deserve accurate ME/CFS education from the Centers for Disease Control, not discredited recommendations for CBT and GET.
May 27, 20223 min read


#MillionsMissing: Videos Created by our Amazing Community
This year’s #MillionsMissing, our community created some amazing videos that we are privileged to highlight. This is just a small sampling of the amazing videos that were shared with us. It would be impossible to include them all, but we thank you all for sharing!
May 26, 20221 min read


#MillionsMissing MAY 2022 Wrap Up
Thank you for illustrating our common thread so that our governments and institutions can respond to this health crisis.
May 25, 20225 min read


Facets of ME: Loneliness
Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships.
Apr 8, 202218 min read


Facets of ME: Cognitive Dysfunction
Learn more about cognitive dysfunction in this months #FacetsofME feature.
Mar 10, 20228 min read


Facets of ME: Post-Exertional Malaise
When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).
Feb 2, 20224 min read


Facets of ME
When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).
Feb 2, 20221 min read
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