NEWS

Stuart Murdoch (Belle and Sabastian) will be interviewed by #MEAction Minnesota’s leader, Terri L Wilder, about his recently released novel, Nobody’s Empire.

For #MillionsMissing 2025, #MEAction is sending out an SOS.

The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.

Read the statement from Ian Simon, the head of the Long COVID Office at Department of Health and Human Services.

Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.

Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.

#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.

As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you!

#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program!

#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going!

As #MEAction prepares for the year ahead, I’m thrilled to share with you a few highlights from the incredible advocacy projects our staff has undertaken this past year.

Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st!

Volunteers from #MEAction Scotland and Long Covid Scotland talked to over 60 MSPs at an Information Stall in the Scottish Parliament.

Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm EST/7pm GMT.

#MEAction is sending an urgent letter to NIH Director, Dr. Monica Bertagnolli, demanding that the NIH fund the ME/CFS Research Roadmap.

RECOVER TLC has opened the RECOVER-TLC Intervention Information Request Form, where you can make suggestions about which drugs and other interventions to trial!

I had the privilege of attending the RECOVER-TLC kick-off meeting while Jaime Seltzer represented the needs of the ME community in a panel discussion.

The Pillow Writers Anthology offers selected writings by the writing group of the same name. Issue 1, Near-Life Experiences, is available now.

The annual report covering what #MEAction UK has done in the year 10/2022-10/2023.

We tallied up some numbers from our #TeachME, TreatME campaign to educate clinicians and medical students about ME, and the results are fantastic!