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Press Release: UNC Closes its Long COVID Clinic – the Only One in the State
The sole Long COVID clinic of North Carolina closed last week after its federal funding ran out.
Jun 23, 20252 min read


Minnesota’s Long COVID Funding Saved from Elimination
The Minnesota Department of Health's Long COVID program has been saved from elimination!
Jun 11, 20253 min read


Sick and Disabled People Protest Medicaid Bill at Capitol
Sick and disabled people are protesting today, Monday, May 12th at the Capitol to tell Congress that forcing chronically ill people to work in order to keep their Medicaid healthcare will only make our country sicker and more reliant on government services.
May 12, 20254 min read


SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk
We cannot allow our elected officials to harm chronically ill and disabled people with rampant cuts. This is yet another SOS moment for people in our community.
May 7, 20252 min read


Share This SOS Image On Your Socials
Share this message about #MillionsMissing with your own networks.
Apr 28, 20251 min read


Millions Missing Scotland 2025: Red alert for ME
#MEAction Scotland will be outside Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to act on its promises.
Apr 27, 20255 min read


#MEAction: Congress Is Hearing from Us
#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.
Apr 23, 20252 min read


SOS: Save our Science
It’s time to send out our SOS signal if we want to have funded research.
Apr 11, 20256 min read


Why We’re Sending out an SOS this #MillionsMissing
On May 12th, we're sending out an SOS to Congress to Save our Support Systems, our Science, and our Society.
Apr 8, 20252 min read


Writers Guild Initiative Writing Workshops: Apply Today
#MEAction is excited to announce we are partnering with the Writers Guild Initiative again to offer creative writing workshops for people with ME and Long COVID!
Apr 4, 20252 min read


Virtual Interview + Q&A with Stuart Murdoch
Stuart Murdoch (Belle and Sabastian) will be interviewed by #MEAction Minnesota’s leader, Terri L Wilder, about his recently released novel, Nobody’s Empire.
Apr 3, 20253 min read


#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2025, #MEAction is sending out an SOS.
Apr 2, 20252 min read


White House Halts Funding for Long COVID Grants
The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.
Mar 27, 20252 min read


Office of Long COVID at HHS Closing
Read the statement from Ian Simon, the head of the Long COVID Office at Department of Health and Human Services.
Mar 25, 20252 min read


Long COVID Awareness Day
Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.
Mar 14, 20252 min read


Why I Joined a Stand Up for Science Rally
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Mar 12, 20252 min read


Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.
Mar 6, 20252 min read


The Year Ahead
As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you!
Jan 23, 20255 min read


Home Test To Treat – Findings Summary
#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program!
Jan 7, 20251 min read


We Are Fighting for YOU Everyday! Here’s How…
#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going!
Dec 17, 20242 min read
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