Calls for immediate public release of RECOVER's clinical trial design

#MEAction Colorado’s first legislative effort in Colorado began with an ME/CFS day declaration in the Colorado Legislature on February 25, 2020. Representative Alex Valdez read into the legislative record a proclamation about the presence of and deleterious effects of ME in Colorado. This effort was relatively easy to accomplish and consisted of finding a representative willing to do it. One of our #MEAction CO members lived in his district and Valdez responded by gladly doin

UPDATE: We want to provide a brief update on Sami Berry’s case and what she needs help with now. The situation in hospital reached the point that Sami decided she had to self-discharge to try and stay alive. She is at home with a Percutaneous Endoscopic Jejunostomy (PEJ ) tube but she needs treatment with antiemetics to help keep any feed down. She is not doing well at all. If you have a suggestion for a private GP or a private specialist in the UK that does not require a GP

This community is at the heart of everything we do. With this being a centering foundation for the work that we do, it is no coincidence that we have all experienced moments that shine a light on how beautiful and heartwarming this community and our work can be! This Valentine’s Day we asked our staff to share moments that have warmed their hearts:A moment that warmed my heart was witnessing the community coming together at the September 2022 #MillionsMissing Protest. People

Article summary: Sue Webber MSP’s Member’s Business debate took place in the Scottish Parliament on Thursday 2nd February, 2023. It was a successful debate with a good turnout of MSPs from across all parties, and it had to be extended due to the amount of MSPs who wanted to speak. There were calls on the government to pilot specialist services, fund research, and implement the NICE guideline. Many MSPs shared stories that people had sent them and talked about how many people

Welcome to the final #FacetsOfME for 2022, where we focus on centering ME during the holidays!

#MEAction and Mayo Clinic win SIDM for diagnostic and treatment improvement at Mayo Clinic Rochester for people with ME/CFS!

Check out these tips on traveling with ME in this month's #FacetsofME feature.

Learn more about temperature dysregulation in this month's #FacetsofME feature.

Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships.

Learn more about cognitive dysfunction in this months #FacetsofME feature.

When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).

When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).

#MEAction has written to the NIH expressing our deep concern over the RECOVER Initiative.

Experts at the #MEAction briefing linked long COVID to myalgic encephalomyelitis (ME) and urged NIH to research both conditions together.

A new education module designed to teach healthcare professionals about ME has been released. Send the new module to your GP, using our email template.

Over the last many months, social media platforms like Twitter, Facebook, and YouTube have been  flooded with disinformation  about COVID-19. We wanted to make you aware of the problem, equip you with tools for how to recognize and respond to disinformation, and enlist your help keeping our community safe. According   to   numerous   reports , much of this disinformation comes from organized campaigns by domestic groups or foreign governments. They rely on a mix of fake acco

We’re incredibly pleased to announce that we not only met but exceeded our initial goal of sending 6,000 postcards out into the world!

After many, many months of writing, editing and revising, #MEAction Scotland is finally ready to launch its manifesto! Thank you to all...

After the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow, it seems appropriate to reflect on the impact of the conference on educating GPs about ME/CFS.