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NEWS
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New T-Cell Research at the University of Massachusetts
#MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, sat down with Dr. Liisa Selin, MD, PhD, and Dr. Anna Gil, PhD, recipients of an R01 grant to research immune system dysregulation in people with ME/CFS. Selin, a professor of pathology and a person with ME herself, and Gil, a viral immunologist, comprise the two-person Selin lab at the University of Massachusetts T.H. Chan Medical School. Selin and Gil’s primary area of study involves T cells, white blood
May 18, 20223 min read


Exciting news about Mayo Clinic!
We’ve got some very exciting news this week!Clinicians working at the Long COVID clinic at Mayo Clinic’s campus in Rochester, Minnesota met with #MEAction to discuss treatment, research and improved community engagement for people with ME! They reached out to us because they were interested in engaging with a national patient-led organization with strong community ties.Mayo Clinic is a leader in clinical care in the United States. Many healthcare providers in the US and beyon
May 17, 20221 min read


New Volunteer Leadership Program Led by Experts!
We are thrilled to announce that Chimére Smith and Terri Wilder will be joining #MEAction as consultants to execute a new volunteer leadership training program funded by the Ford Foundation! We are so thrilled that we will be able to expand our volunteer programs to include robust training and provide fulfilling roles and opportunities for anyone who wants to work with us, become an activist with us, or provide support for a growing community. We are so privileged to have Chi
May 10, 20223 min read


Facets of ME: Loneliness
Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships.
Apr 8, 202218 min read


Facets of ME: Cognitive Dysfunction
Learn more about cognitive dysfunction in this months #FacetsofME feature.
Mar 10, 20228 min read


Facets of ME: Post-Exertional Malaise
When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).
Feb 2, 20224 min read


Facets of ME
When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).
Feb 2, 20221 min read


NIH Long COVID Research Lacks Clear Plan to Identify and Track ME/CFS
#MEAction has written to the NIH expressing our deep concern over the RECOVER Initiative.
Jan 14, 20222 min read


Telebriefing was a Success!
Experts at the #MEAction briefing linked long COVID to myalgic encephalomyelitis (ME) and urged NIH to research both conditions together.
Mar 29, 20213 min read
#MEAction Scotland launch their Manifesto
After many, many months of writing, editing and revising, #MEAction Scotland is finally ready to launch its manifesto! Thank you to all...
Oct 28, 20182 min read
UK: More than 250 GPs Attended ME Workshop at the RCGP Conference
After the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow, it seems appropriate to reflect on the impact of the conference on educating GPs about ME/CFS.
Oct 18, 20182 min read


#MEAction Scotland Speaks at Scottish Parliament Petitions Committee – Watch the Video
#MEAction Scotland appeared before the Scottish Parliament Petitions Committee on June 7th to give evidence on its petition to review treatment of ME patients in Scotland.
Jun 7, 20181 min read
Meet the Millions Missing – Protest to Raise Awareness of ME in Scotland
Press Release Details of the Event Millions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the...
May 12, 20174 min read
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