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NIH Must Not Overlook Evidence of Exercise Harm
Long COVID Exercise study must address safety, efficacy concerns.
Mar 22, 20232 min read


MEAction questions Long COVID exercise study's safety, efficacy
Calls for immediate public release of RECOVER's clinical trial design
Mar 6, 20232 min read


#MEAction Colorado Works With Governor’s Office to Create A New Senior Policy Advisor Role on Long COVID and Post Viral Infection Planning–Leading to Statewide Report on Long COVID
#MEAction Colorado’s first legislative effort in Colorado began with an ME/CFS day declaration in the Colorado Legislature on February 25, 2020. Representative Alex Valdez read into the legislative record a proclamation about the presence of and deleterious effects of ME in Colorado. This effort was relatively easy to accomplish and consisted of finding a representative willing to do it. One of our #MEAction CO members lived in his district and Valdez responded by gladly doin
Feb 24, 20234 min read


Facets of ME: Centering ME During the Holidays
Welcome to the final #FacetsOfME for 2022, where we focus on centering ME during the holidays!
Dec 8, 202216 min read


#MEAction & Mayo win Grant for Diagnostic Improvement
#MEAction and Mayo Clinic win SIDM for diagnostic and treatment improvement at Mayo Clinic Rochester for people with ME/CFS!
Sep 22, 20223 min read


Facets of ME: Travel Tips
Check out these tips on traveling with ME in this month's #FacetsofME feature.
Aug 26, 202214 min read


Facets of ME: Temperature Dysregulation
Learn more about temperature dysregulation in this month's #FacetsofME feature.
Jun 23, 20227 min read


Facets of ME: Loneliness
Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships.
Apr 8, 202218 min read


Facets of ME: Cognitive Dysfunction
Learn more about cognitive dysfunction in this months #FacetsofME feature.
Mar 10, 20228 min read


Facets of ME: Post-Exertional Malaise
When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).
Feb 2, 20224 min read


Facets of ME
When discussing the facets of ME, it seems almost impossible to start with anything other than post-exertional malaise (PEM).
Feb 2, 20221 min read


NIH Long COVID Research Lacks Clear Plan to Identify and Track ME/CFS
#MEAction has written to the NIH expressing our deep concern over the RECOVER Initiative.
Jan 14, 20222 min read


Telebriefing was a Success!
Experts at the #MEAction briefing linked long COVID to myalgic encephalomyelitis (ME) and urged NIH to research both conditions together.
Mar 29, 20213 min read
Welcome Jaime Seltzer to the #MEAction Team – Director of Scientific and Medical Outreach
We're thrilled to welcome Jaime Seltzer as our Director of Scientific and Medical Outreach.
Jun 11, 20182 min read
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