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How Dept. of Labor can better track disability from chronic illness
Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor (DOL) should make in order to better track disability due to chronic illnesses such as ME/CFS and Long COVID in its regular surveys of disability employment issues. We provided feedback on ways to improve questions on topics related to work history, barriers to employment, job accommodations, commuting and work hours, financial assistan
Aug 26, 20223 min read


Dept. of Labor hosts dialogue on Long COVID in the workplace
The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th.In addition to people with Long COVID, #MEAction encourages workers and former workers with ME/CFS to participate in this dialogue and share their experiences, insights and possible so
Jul 21, 20224 min read


Dept. of Labor Updates Information on ME/CFS for Workers, Employers
The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace outcomes.At #MEAction’s recent meeting with ODEP we notified them that their informational resource on “Chronic Fatigue Syndrome” was out of date and
Jun 20, 20222 min read
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