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Why I Joined a Stand Up for Science Rally
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Mar 122 min read


Pillow Crafters Showcase: Healing Themes—The Wildflower Process
Experience the Pillow Crafters Showcase: Healing Themes—The Wildflower Process, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis.
Mar 61 min read


#MEAction Celebrates Powerful Women
#MEAction acknowledges and celebrates the amazing women in our community.
Mar 55 min read


Town Hall Summary
Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that will affect the disability and chronic illness communities the most.
Feb 282 min read
Press Release: Cochrane Library Faces Backlash Over ME/CFS Review Cancellation
Cochrane Library has abandoned an independent analysis of its 2019 review of exercise therapy for ME/CFS, and altered the date to appear current when it's sources are actually 10 years old or more.
Jan 313 min read


A Heart-filled Very Modified Movement Class on 2/14
Join #MEAction for a heart-filled, very modified movement class of the year on Friday, February 14th at 11am PST/2pm EST/7pm GMT.
Jan 303 min read
Cochrane Collaboration Cancels Independent Analysis of Exercise Therapy Review for ME/CFS
#MEAction is raising the alarm about Cochrane Collaboration's sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for ME/CFS.
Jan 244 min read


The Year Ahead
As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you!
Jan 235 min read


#NotJustFatigue Video Series: Interview with Creator Elizabeth Ansell
Over the past year, the #NotJustFatigue website released a 10-part, documentary-style, short-form video series on different aspects involved in living with ME.
Jan 133 min read


Exploring the Galaxies: Day In the Life of Our Community Engagement & Social Media Manager
We are now entering our 3rd #MEAction galaxy tour! Enjoy the journey as we share a typical day in the life of our Community Engagement and Social Media Manager, Holly Latham!
Dec 18, 20244 min read


Why You Should Gift to #MEAction this Season
As #MEAction prepares for the year ahead, I’m thrilled to share with you a few highlights from the incredible advocacy projects our staff has undertaken this past year.
Dec 12, 20243 min read


Support Keeping Telehealth – Take Action Today!
Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st!
Dec 11, 20242 min read


Community is Key
When challenges come our way, this community has shown us over and over again that we are stronger together.
Nov 27, 20242 min read


#MEAction Gives Thanks
We have come to the time of year where we focus on what we are thankful for and what has made a difference in our lives.
Nov 27, 20242 min read


A Very Modified Movement Class on 11/15
Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm EST/7pm GMT.
Nov 1, 20243 min read


Pillow Writers Anthology, Issue 1: Near-Life Experiences Available Now!
The Pillow Writers Anthology offers selected writings by the writing group of the same name. Issue 1, Near-Life Experiences, is available now.
Sep 18, 20246 min read


#MEAction Awarded 3-Year Grant by Minnesota Department of Health Long COVID Program
#MEAction has just been awarded a 3-year grant by the Long COVID Program of the Minnesota Department of Health (MDH) to address the impacts of Long COVID, ME/CFS, and related conditions.
Jul 30, 20242 min read


Severe ME Artists Project 2024
The Severe ME Artists Project is back for 2024! Submissions are now open until July 25th.
Jun 26, 20244 min read


Pride Is Valid No Matter How One Celebrates or Experiences It
In honor of Pride Month, #MEAction is sharing a heartfelt message from our board member, Jennifer England.
Jun 25, 20242 min read


#MillionsMissing Week is Here: #TeachMETreatME in Action!
Learn more about our campaign, the events, & how to get involved
May 7, 20243 min read
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