NEWS

We are excited to share some promising updates about the scientific work #MEAction is leading to advance the field of ME/CFS research.

The sole Long COVID clinic of North Carolina closed last week after its federal funding ran out.

#MEAction Georgia's Maggie Boxey gave a TEDx talk about her experience as a person with ME.

I have been honored as I have watched our volunteers share what makes them powerful and who they see power in for Women’s History Month. I hope you will look back on what has been shared so far!

Where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions: we still have a long road ahead of us.

Read the statement from Ian Simon, the head of the Long COVID Office at Department of Health and Human Services.

This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research Centers focused on ME/CFS.

#MEAction GA volunteer uses her Baby Deer Bakery to spread awareness for ME and help raise funds for #MEAction.

Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.

Experience the Pillow Crafters Showcase: Healing Themes—The Wildflower Process, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis.

#MEAction and PLRC delivered a letter to HHS Secretary, Robert F. Kennedy, Jr. this past week, calling for him to reinstate the Long COVID Advisory Committee.

#MEAction acknowledges and celebrates the amazing women in our community.

Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that will affect the disability and chronic illness communities the most.

#MEAction's Anki Flashcards have been recommended by the CDCon its new ME/CFS page for medical students!

Cochrane Library has abandoned an independent analysis of its 2019 review of exercise therapy for ME/CFS, and altered the date to appear current when it's sources are actually 10 years old or more.

#MEAction is raising the alarm about Cochrane Collaboration's sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for ME/CFS.

As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you!

Over the past year, the #NotJustFatigue website released a 10-part, documentary-style, short-form video series on different aspects involved in living with ME.

Back in September, #MEAction Georgia partnered with the CDC and Emory School of Nursing to host Voice of the Patient: A Panel Discussion with #MEAction Georgia.

#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program!