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#MEAction Gives Thanks
We have come to the time of year where we focus on what we are thankful for and what has made a difference in our lives.
Nov 27, 20242 min read


#MEAction & Mayo Clinic Projects Continue - New Grant Awarded
#MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by STTI.
Nov 18, 20243 min read


You're Invited: The Beth Mazur Innovation Prize Fundraiser
You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST.
Nov 1, 20241 min read


#MEAction Scotland Publishes Refreshed Strategic Priorities
#MEAction Scotland has refreshed and updated its strategic priorities for the period 2024-2026.
Nov 1, 20241 min read


A Very Modified Movement Class on 11/15
Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm EST/7pm GMT.
Nov 1, 20243 min read


Urgent Action Needed: Demand NIH Fund the ME/CFS Research Roadmap!
#MEAction is sending an urgent letter to NIH Director, Dr. Monica Bertagnolli, demanding that the NIH fund the ME/CFS Research Roadmap.
Oct 10, 20240 min read


Submit Long COVID Drug Recommendations to RECOVER-TLC!
RECOVER TLC has opened the RECOVER-TLC Intervention Information Request Form, where you can make suggestions about which drugs and other interventions to trial!
Oct 7, 20241 min read
#MEAction UK: Postcards to Doctors for #MillionsMissing 2024
This global #MEAction initiative aims to raise awareness among medical professionals of the challenges faced by ME/CFS and emphasise the need for healthcare education about this condition.
Sep 26, 20242 min read


The RECOVER-TLC: The Path Forward
I had the privilege of attending the RECOVER-TLC kick-off meeting while Jaime Seltzer represented the needs of the ME community in a panel discussion.
Sep 26, 20244 min read


Pillow Writers Anthology, Issue 1: Near-Life Experiences Available Now!
The Pillow Writers Anthology offers selected writings by the writing group of the same name. Issue 1, Near-Life Experiences, is available now.
Sep 18, 20246 min read


#MEAction UK's email/letter to Andrew Gwynne MP
To: Andrew Gwynne, Under Secretary of State for Public Health and Prevention Subject: Treatment of Very Severe MEÂ Email:...
Sep 16, 20243 min read


#MEAction UK's annual report Oct 2022 - Oct 2023
The annual report covering what #MEAction UK has done in the year 10/2022-10/2023.
Sep 16, 20241 min read


#TeachMETreatME: We Can’t Believe These Numbers
We tallied up some numbers from our #TeachME, TreatME campaign to educate clinicians and medical students about ME, and the results are fantastic!
Sep 4, 20243 min read


#TeachMETreatME: Share the Mayo Clinic CME With Your Doctor
We encourage you to share the Mayo Clinic Proceedings CME course on ME/CFS with your doctor!
Aug 30, 20241 min read


#MEAction Awarded 3-Year Grant by Minnesota Department of Health Long COVID Program
#MEAction has just been awarded a 3-year grant by the Long COVID Program of the Minnesota Department of Health (MDH) to address the impacts of Long COVID, ME/CFS, and related conditions.
Jul 30, 20242 min read


Severe ME Artists Project 2024
The Severe ME Artists Project is back for 2024! Submissions are now open until July 25th.
Jun 26, 20244 min read


Pride Is Valid No Matter How One Celebrates or Experiences It
In honor of Pride Month, #MEAction is sharing a heartfelt message from our board member, Jennifer England.
Jun 25, 20242 min read


Questions to Ask Prospective MPs About ME/CFS
With the upcoming UK election, It’s important that candidates are made aware of the challenges facing people with ME and Long COVID.
Jun 4, 20242 min read


#MEAction Scotland publishes impact statement
See #MEAction Scotland's impact statement for the period between 3/2022 and 5/2023.
May 23, 20241 min read


#TeachMETreatME: Celebrating An Impactful Campaign
We are THRILLED to share the successes of our #TeachMETreatME campaign as we report back on the medical education events that have taken place so far.
May 17, 20244 min read
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