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#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing
Back in September, #MEAction Georgia partnered with the CDC and Emory School of Nursing to host Voice of the Patient: A Panel Discussion with #MEAction Georgia.
Jan 8, 20254 min read


Home Test To Treat – Findings Summary
#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program!
Jan 7, 20251 min read


Exploring the Galaxies: Day In the Life of Our Community Engagement & Social Media Manager
We are now entering our 3rd #MEAction galaxy tour! Enjoy the journey as we share a typical day in the life of our Community Engagement and Social Media Manager, Holly Latham!
Dec 18, 20244 min read


We Are Fighting for YOU Everyday! Here’s How…
#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going!
Dec 17, 20242 min read
Exploring the Galaxies: Day In the Life of Our Director U.S Advocacy Director
We only have 17 days left for our End Of Year Fundraiser!
Dec 13, 20244 min read


Why You Should Gift to #MEAction this Season
As #MEAction prepares for the year ahead, I’m thrilled to share with you a few highlights from the incredible advocacy projects our staff has undertaken this past year.
Dec 12, 20243 min read


Support Keeping Telehealth – Take Action Today!
Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st!
Dec 11, 20242 min read


#MEAction Scotland Volunteers in Scottish Parliament
Volunteers from #MEAction Scotland and Long Covid Scotland talked to over 60 MSPs at an Information Stall in the Scottish Parliament.
Dec 6, 20243 min read


Exploring the Galaxies: Day in the Life of Activist & Volunteer Coordinator
Read about a day in the life of our Activist & Volunteer Coordinator, Shalida Dobbins!
Dec 5, 20243 min read


Community is Key
When challenges come our way, this community has shown us over and over again that we are stronger together.
Nov 27, 20242 min read


#MEAction Gives Thanks
We have come to the time of year where we focus on what we are thankful for and what has made a difference in our lives.
Nov 27, 20242 min read


#MEAction & Mayo Clinic Projects Continue - New Grant Awarded
#MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by STTI.
Nov 18, 20243 min read


You're Invited: The Beth Mazur Innovation Prize Fundraiser
You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST.
Nov 1, 20241 min read


#MEAction Scotland Publishes Refreshed Strategic Priorities
#MEAction Scotland has refreshed and updated its strategic priorities for the period 2024-2026.
Nov 1, 20241 min read


A Very Modified Movement Class on 11/15
Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm EST/7pm GMT.
Nov 1, 20243 min read


Urgent Action Needed: Demand NIH Fund the ME/CFS Research Roadmap!
#MEAction is sending an urgent letter to NIH Director, Dr. Monica Bertagnolli, demanding that the NIH fund the ME/CFS Research Roadmap.
Oct 10, 20240 min read


Submit Long COVID Drug Recommendations to RECOVER-TLC!
RECOVER TLC has opened the RECOVER-TLC Intervention Information Request Form, where you can make suggestions about which drugs and other interventions to trial!
Oct 7, 20241 min read
#MEAction UK: Postcards to Doctors for #MillionsMissing 2024
This global #MEAction initiative aims to raise awareness among medical professionals of the challenges faced by ME/CFS and emphasise the need for healthcare education about this condition.
Sep 26, 20242 min read


The RECOVER-TLC: The Path Forward
I had the privilege of attending the RECOVER-TLC kick-off meeting while Jaime Seltzer represented the needs of the ME community in a panel discussion.
Sep 26, 20244 min read


Pillow Writers Anthology, Issue 1: Near-Life Experiences Available Now!
The Pillow Writers Anthology offers selected writings by the writing group of the same name. Issue 1, Near-Life Experiences, is available now.
Sep 18, 20246 min read
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