×

Reports & Fact Sheets

Learn about ME. Find educational tools for your advocacy.


Overview

What is ME? – a brief overview of the disease


IOM Report

The Institute of Medicine released a report on ME/CFS in which a panel of experts reviewed over 9,000 separate studies. “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness” is an excellent summary of the research. Also searchable for information on a specific topic.

Report brief
Guide for Clinicians
Fact sheet
Full report


Diagnostic Criteria

It is imperative that both clinicians and researchers use an accurate diagnosis criteria for ME/CFS in order not to become a catch basin for any patient reporting “fatigue.”

Canadian Consensus Criteria | International Consensus Criteria

IACFS/ME Clinical Care primer | Pediatric Primer

 


Science

Myalgic Encephalomyelitis is a multi-system disease. Research continues to show metabolic dysfunctions, neurological inflammation, systemic inflammation, immunodeficiency, autoimmunity and an altered microbiome in people with ME.

#MEAction ME/CFS Research Summary – Full Summary

#MEAction ME/CFS Research Summary – Highlights

 


Reports on Graded Exercise Therapy

Thousands of patients have reported harm from Graded Exercise Therapy, and the focus on exercise continues to distract governments from pursuing effective treatments.

Post-Exertional Malaise & Graded Exercise Therapy in ME/CFS: Primer

The flawed science behind the CBT and GET recommendations

Post-Exertional Malaise – a report

 


UNITED STATES advocacy tools

Brochures

We have created trifold brochures that you can print and distribute. (Best printed in color. If printing at home, print inside version first, select landscape orientation, print, flip and put back into the printer with the print facing up, print outside version.) 

About ME (general audience) –  inside and outside.

I have ME. What’s Next. (For people who think they might have ME.) – inside and outside.

                                        A guide for Caregiversinside and outside.


Fact Sheets 

#MEAction Congressional Fact Sheet – Facts about ME/CFS to present to your representatives

Clinician Handout – Diagnosing ME/CFS by Dr. Lucinda Bateman and Dr. Susan Levine

Talking points on ME with sources

Fact Sheet about ME from #MillionsMissing


Reports

Disease burden of ME/CFS – based on research paper by Dimmock, Mirin & Jason

Prevalence spreadsheet that shows the number of people in your state with ME

The Voice of the Patient,” a report on people with ME and CFS by the FDA.

 

 


UNITED KINGDOM advocacy tools

UK Fact Sheet

Fact Sheet about ME from #MillionsMissing

Scottish Good Practice Statement on ME-CFS – this set of guidelines informs doctors of the potential adverse effects of graded exercise and the use of cognitive behavioral therapy not as a cure but as a coping tool, similar to other chronic illnesses.


AUSTRALIA advocacy tools

Australia Fact Sheet