Call ME Frail but protect our healthcare. ME must be classified as a “medically frail” condition. Medicaid work requirements threaten to harm our community unless ME/CFS and Long Covid are put into this category of listed diseases. Join us. We are #FrailandFurious this #MillionsMissing. Hey frail friends and friends of the frail, let's use a little humor to get more signatures for our letter to HHS! The you either laugh or cry kind! Let's get that letter to HHS signed now! Link in our bio or head to millionsmissing.org. A huge thanks to all who volunteered to be in this video! Now let's get it seen! #Medicaid #ProtectMedicaid #Disability Video description: Video opens like the beginning of a meeting where a person is just waiting for "frail" to join them. Then many, many "frails" (all different people -different ages, skin colors, and functionality- some in bed, some sitting, some walking) enter and say hi. Some write a note or type a message. Others are speaking to "frail" such as a receptionist in a dr's office. Then it goes back to original person who says "there's so many of you." The screen then goes to text "Call me frail just let me keep my healthcare." Frail and Furious Millions Missing logo then pop up. Link to our letter to HHS to sign.

Join us. Speak up. Be part of Frail and Furious. The time to act is now. Learn more at millionsmissing.org. #MillionsMissing #FrailAndFurious #Disability #Medicaid #MECFS #LongCovid #ProtectMedicaid #healthcare #disabled #pwME Transcript: Why is the medically frail exemption to Medicaid work requirements so important for us? In the US, we've launched Frail and Furious, a year-long campaign to protect Medicaid access for people with ME, Long COVID, and other disabilities. Being labeled “medically frail” could protect your healthcare access, and literally save your life. That's why we are pushing federal and state leaders to include ME and Long COVID in the “medically frail” category. This status can exempt people from harmful new Medicaid work requirements, which, by definition, will require people to work or lose their healthcare when implemented this year. But here's the problem. The government gets to decide what “medical frailty” means. If they make the definition too narrow, people with ME and Long COVID will be left out. Millions of people could lose the healthcare that they depend on to survive. By law, the medically frail category should include people with serious or complex medical conditions. People with ME and Long COVID clearly meet this standard. We need to make that clear and demand recognition. The good news is that these rules are still being written, so we have time to speak up and push for inclusive definitions of medical frailty. And we have the power to join with the entire disability community to advocate for an exemption application process that is as simple, accessible, and supported as possible. Medicaid is survival – for healthcare, medication, and independence. Losing it isn't an inconvenience, it's life-and-death. Join us. Speak up. Be part of Frail and Furious. The time to act is now. Video description: Bearded, Latine man with long black hair wearing a white shirt and khaki pants sits in front of a curtain and speaks directly to the camera.

Shaina shared her #Medicaid story at #MillionsMissing 2026. Access to Medicaid can be lifesaving. Our #FrailAndFurious campaign is going on all year and we are focusing on protecting Medicaid for ME, Long COVID, other infection-associated diseases, and other disabilities. Shaina shared her Medicaid was taken away and that “losing your access to care… is one of the most traumatic experiences.” We are trying to prevent others from living through Shaina’s traumatic and life-endangering experience as these new work requirements to Medicaid go into effect. Thank you to Shaina for her openness and willingness to speak out to help others. We appreciate you! Please join us in our fight! https://www.meaction.net/savemedicaid Right now we have a $7k match to all given to help advocacy. https://millionsmissing.funraise.org/fundraiser/advocacy #MECFS #disability #myalgicEncephalomyelitis #ProtectMedicaid #disabled #longCovid #MEAction Video description: An olive skin-toned woman wearing a red jacket, blue leggings, and glasses sits in a wheelchair outside HHS building speaking into a microphone.