#MillionsMissing

A history of UK actions

#MillionsMissing is an important date in #MEAction’s calendar. Every year, around ME Awareness Day on 12th May, people with ME, carers and allies around the world organise and take part in public and virtual events. 

We come together to raise awareness of what it’s like to live with this condition and demand action and change for the ME community. We are the #MillionsMissing and it’s time for people to see us. 

#MillionsMissing aims

Equality

To demand equality for all people with ME who have been stigmatised and ostracised from healthcare and support.

Treatment

To demand effective treatment to manage this disease based on the best available evidence.

Research

To demand research funding commensurate to disease prevalence and burden.

2020

I got a virus, I didn't die, but I never recovered. We are the #MillionsMissing

Watch our 2020 campaign film:

As COVID-19 devastates the world, with hundreds of thousands dying from this novel disease, another disastrous outcome lays in wait.

Increasing masses are reporting long term illness after contracting COVID-19.

Myalgic encephalomyelitis (ME) is triggered by a virus in up to 80% of cases, and leads to the lowest average quality of life amongst all diseases measured, including various cancers, lupus, chronic renal failure, heart disease and more.

People with ME are now raising the alarm. They got viruses from which they didn’t recover, and they know more acutely than anyone else: death is not the only devastating outcome from this pandemic.

Virtual Event

In 2020, due to the coronavirus pandemic, we had to do things a little differently. The #MEAction UK and #MEAction Scotland teams joined forces to create a bumper virtual event with brilliant speakers from across the UK.

Watch the #MillionsMissing 2020 UK virtual event. Including interviews and speeches from:

  • Carol Monaghan MP
  • Stuart Murdoch from Belle and Sebastian
  • Catherine Hale and Dr Anna Ruddock from the Chronic Illness Inclusion Project
  • Professor Chris Ponting, Chair of Medical Bioinformatics, University of Edinburgh.
  • Dionne Joseph, Carer
  •  Dr Nina Muirhead, surgeon and ME educator
  • Vicky Foxcroft MP, Shadow Minister for Disabled Peolpe
  • David Green (director of the Florence Nightingale Museum)
  • Hannah Sweeney, pwME
  • Laura Smith, pwME
  • Ellie Rushton, Ally

2019

#MillionsMissing events and demonstrations have taken place across the UK in all shapes and sizes. In 2019 more than 30 events were held: from London to Glasgow, Cardiff to Sheffield and many more. Over the years we’ve seen stories shared, politicians speaking, musicians performing – even stilt walkers and giant pandas! Another important part of our events is amplifying the voices of people with ME who are housebound or bedbound, and therefore too unwell to join us in person.

London

Sheffield

Bristol

Glasgow

Birmingham

Newcastle upon Tyne

Norwich

Southampton

Morecambe

Brighton

Shrewsbury

Manchester

Newquay

Gloucester

Falkirk

Cambridge

Belfast

Sunderland

Lewes

Nottingham

St Ives

2018

2017

2016

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