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San Francisco City Hall
A man clad in a red #MillionsMissing shirt speaks on the steps of San Francisco's city hall.
A crowd of people at a #MillionsMissing demonstration pose in front of pairs of empty shoes. They ho

ABOUT

#MEAction CA is led by Art Mirin and Jules Salamon and our google group includes nearly 200 members throughout our most populous state. We have been engaged in State advocacy efforts since 2016, having had many interactions with the State legislature, the University of California, the California Department of Public Health, the Medical Board of California, and the California Medical Association. The advent of COVID has roughly tripled the nearly 200,000 California afflicted with ME/CFS (pre-pandemic), making it all the more important that the State take action to address ME/CFS.

OUR WINS

Our article on ME/CFS and long COVID, along with an interview of a COVID long-hauler experiencing ME/CFS onset, was published in the July 2021 Newsletter of the Medical Board of California. We succeeded in obtaining legislative sponsorship of $120 million for centers of excellence in Long COVID along with ME/CFS in 2022 but unfortunately the budget request did not advance. We have engaged the University of California vis-à-vis their providing clinical care to people with ME/CFS and made a well-received presentation to the UC Regents Health Services Committee in 2022. Our more recent efforts have focused on educating health providers on ME/CFS and its connection with Long COVID.

UPCOMING
EVENTS

We meet virtually on the second Thursday of the month at 6:00 pm! Find our next meeting here.

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