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2026

In parts of Europe and Canada, there are still few ME clinicians available. People with ME face the danger of being misdiagnosed and admitted for psychiatric care in some countries. 

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In Mexico and South America, ME is severely underdiagnosed. There are significant inequities and disparities in access to care.

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In Africa and the Middle East, significant socio-economic challenges and lack of ME-literate clinicians lead to a severe neglect of people with ME. 

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All of these injustices happen because ME is not taken with the seriousness we deserve. It’s why we are asking you to amplify the medical frailty of ME. We are frail and furious and we need you to join this fight! 

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This #MillionsMissing, we are Frail and Furious! This May, we will come together to show the world how devastating this disease is. We ask you to share your story on social media, once again, about what it’s like to live with this serious, complex medical condition in order to get the recognition we need and deserve.

JOIN US!

SHARE YOUR STORY: Take a look at our toolkit for prompts and resources on how to share your story and participate from home during #MillionsMissing:

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