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ABOUT
MEAction Maryland is a welcoming community group dedicated to helping people with myalgic encephalomyelitis (ME/CFS) and Long COVID. We provide support to patients and caregivers, participate in medical research, and inform state and federal officials about the nature and prevalence of complex chronic illness.
Our chapter represents a coalition of people living with chronic illness who, together with caregivers and other allies, foster community, develop outreach, and organize policy actions. The group includes people of varying severity and disability levels. We collaborate on sustainable initiatives in which the lived experience of illness provides a platform to advocate for better health outcomes.
Based in Maryland, the group’s monthly advocacy and support meetings are online and open to individuals throughout North America. We welcome new and experienced advocates and those who are undiagnosed or self-diagnosed. Join us!
OUR WINS
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Completed series of six medical education webinars on pediatric ME with Dr. Peter Rowe (Johns Hopkins Children’s Center Chronic Fatigue Clinic): the culmination of a 2-year TeachME/TreatME project, each webinar includes a research presentation and panel discussion of people with lived experience of pediatric ME
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Published Maryland Department of Health (MDH) Long Covid Resources website (2 yr.+project)
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Testified at the Maryland State House in favor of the Long Covid Innovation Grant and Loan Bill and coordinated support campaign
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Co-organized on-site Millions Missing demonstration at the Department of Health and Human Services; coordinated inclusion and promotion of What is [ME] Like? book
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Obtained 6 Maryland Congressional meetings with health staffers to advocate for the NIH MS/CFS Research Roadmap; attended by 7 Maryland advocates
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Members participate in MEAction Advocacy, Social Media, and Narrative Working Groups and the Pillow Writers
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Monthly Advocacy Meeting meets the first Tuesday of the month at 7 pm
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Monthly Community Support Meeting (“Come As You Are”) meets the third Tuesday of the month at 4 pm
UPCOMING
EVENTS
Join us on the 1st Tuesday of each month at 7pm ET for our monthly advocacy call, and on the 3rd Tuesday of each month at 4pm ET for our monthly support call.
Maryland’s monthly advocacy meeting pauses for July and August. Click here for information on all upcoming meetings.
CONTACT
Email - Maryland@meaction.net
Interested in more information? Fill out our Maryland Chapter Interest Form here.
Join us on social media: Join our Facebook group, follow us on Twitter/X, Instagram, or visit Bsky our LinkTree.