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ABOUT
Welcome to the MEAction Florida group! We’ve been an active and growing group for a little over two years, with upwards of 200 members. We are here for support and advocacy alike.
For new members: please know that we are one of the few lucky states to have a ME/cfs specialist right in our backyard: the Institute of Neuroimmune Medicine (INIM) in Davie, ran by Dr. Nancy Klimas. Unfortunately, it is hard to get on their waiting list. In fact, one of our major advocacy efforts will be to find the funding necessary to open an additional facility to support our Florida’s needs.
OUR WINS
In 2018 and 2019 we hosted a large Millions Missing in Orlando! Since our last Millions Missing, we’ve been sending Unrest postcards to our Senators (Marco Rubio and Rick Scott) as well as to our doctors! They help keep our group at the top of their mind, and we will eventually wear them down! This year we’ve gotten a few (Florida specific) legislative projects rolling with a small and dedicated political advocacy team. The team is focusing on two measures that have been successfully passed in Nevada. One is a letter to the NIH from our federal level congressman. The other is on a state level, where we’re researching how to get ME/cfs clinical trials covered by insurance (which will incentivize ME/cfs research in our state).
We are also in the process of helping Dr. Klimas at INIM find funding for a second facility. This is a difficult undertaking that will be, at best, years in the making, but we are pouring our hearts into it.
A small ‘Medical Education’ team has just begun meeting, too, and we’re probing at different strategies for how best to reach the widest number of doctors across Florida.
UPCOMING
EVENTS
Check our Facebook group for in-person and online support group meetings:
Southeast: Monthly Broward CFS/ME/FM Empowerment Group (Contact: Dawn Holt)
N Orlando: Sporadic in-person support meetings (Contact: Anita Nimmo)
Online: Sporadic group video chat for newcomers
Check the calendar for our upcoming call and join details!