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ABOUT
We are a group of people mainly residing in the Southwest, but we have members all over the world. We welcome anyone to join us as we learn to thrive with ME/CFS. Caregivers and allies are welcome too. Each month, we host two online peer support meetings and one meeting to collaborate on advocacy projects.
OUR WINS
Past projects have included:
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A letter with resources sent to every school nurse in Arizona with information on how to recognize undiagnosed Long Covid and M.E. in students.
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Provided the AZ Nurses Association with links to national M.E. informational pages for their newsletter.
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Made a travel guide for people traveling with disabilities to know their rights at the airport.
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Worked with Arizona County Health departments to update their websites and make Long Covid & M.E. resources readily available to their communities.
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Every year, members participate in Senate and Congressional advocacy.
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Handwrote postcards to doctors in AZ to take CME (Continuing Medical Education) courses related to M.E.
See our patient resource: Know Your Rights and Privileges for Airport Travel with ME, which includes an advocacy card to bring with you to the airport.
UPCOMING
EVENTS
The schedule repeats monthly as follows (all times AZ/MTN time):
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Support meeting every first Tuesday at 10 am
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Support meeting every second Thursday at 6 pm
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Advocacy meeting every third Thursday at 6 pm
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See more about events here.
CONTACT
Please contact us at southwest@meaction.net
Join our Facebook group to stay in the loop!
Use an Arizona, Utah, Nevada, or New Mexico zip code when you fill out this form in order to receive meeting email reminders.
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