Long Covid & ME
Understanding the connection
When the SARS-CoV-2 pandemic began, disability advocates sounded the alarm: acute viral infection leads to chronic illness in a significant number of individuals. Dr. Fauci repeatedly warned of the risk patients would develop myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Post-viral disease is nothing new. Yet despite its high prevalence and severity, research and clinical care into ME/CFS lags behind the times. Our goal is to ensure that everyone can easily access the information they need to make the best possible decisions for the health of their families, patients, and for their own well-being.
Our Active Campaigns
#MEAction's Pacing campaign
Mobilize with #MEAction to help people with Long COVID get the best possible guidance from the start. We know the harm that has been done to the ME community. Now, let us use our voices to protect others.
#MEAction Pacing GuideThe #MEAction Pacing Guide is an introduction for patients and healthcare providers to the best activity management strategy for people who experience post-exertional malaise: pacing. Available in English, Italian, and Swedish. Click below to access our Pacing Guides.
#MEAction Continuing Medical Education:#MEAction NY’s Continuing Medical Education course, Post-viral Syndrome and ME/CFS: what every clinician needs to know, provides insight into ME in the context of SARS-CoV-2. Healthcare providers need continuing medical education to keep their licenses current; share the link with your local doctors and hospital systems. Click to access the homepage for the #MEAction NY CME on ME/CFS and Long COVID.
You help make great resources happen!
If you find value in our #StopRestPace campaign, our Pacing Guide, or our Continuing Medical Education courses, please consider making a donation.
Other Recommended Resources for Long COVID
The National Network for Long COVID Justice, of which #MEAction is a Strategy Circle Partner, asks you to join us in a pledge for disability justice. We must end practices and policies that further marginalize, disabled and chronically ill people.