Urgent – Contact Your Senators Now to Co-sponsor the ME/CFS Awareness Day Resolution

***UPDATE: THIS ACTION IS NOW OVER***

 

Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness Day Resolution NOW!

Although the original co-sponsors would like to receive sign-ons as soon as possible and ideally by COB Wed, May 8th, they’re willing to accept co-sponsors up until the passage of the bill, targeted for this Fri, 5/10. Senators Markey and Collins will then “hotline” the resolution on Wednesday, May 8th with the intent of passing it Friday, May 10th. If your senators cannot make the  deadline to co-sponsor, please ask them to support – or at least not object to – the Resolution’s passage by unanimous consent.

Contact Your Senators

If you know a staffer at your senators offices, please contact them directly!

The Resolution:

(1) supports the goals of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day.
(2) Recognizes and affirms the commitment of the United States to—

(A) supporting research and medical education for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; and
(B) promoting awareness among health professionals and the public about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; and

(3) recognizes the continued importance of—

(A) health care professionals and medical researchers who care for individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; and
(B) the work of the National Institutes of Health, the Centers for Disease Control and Prevention, and other Federal agencies, in conjunction with researchers, clinicians, stakeholders, experts, and individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, to discover the cause of, and develop and improve diagnosis of, treatments for, and a cure for, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

You can read the full resolution here.

PHONE CALL INSTRUCTIONS:

After you have sent your emails, please follow up with a call to your Senator’s office. Go here to find your SENATORS: https://www.senate.gov/general/contact_information/senators_cfm.cfm

Once you have identified the phone number for their Washington DC office, you can use the script below to make your call.

CALL SCRIPT:

Hello, my name is _______ (your name) and I am calling from _______ (city), ______ (state) in zip code ______ (your zip code). I am calling to ask Senator _________ to please co-sponsor a resolution in support of ME/CFS Awareness Day.

I already emailed this request and the resolution to your office. Although the original co-sponsors would like to receive sign-ons as soon as possible and ideally by COB Wed, 5/8 they’re willing to accept co-sponsors up until the passage of the bill, targeted for this Fri, 5/10 If your office cannot make this deadline, please let us know that the Senator will support – or at least not object to – the Resolution passing by unanimous consent.

To sign on, please contact Brianna Battle in Senator Markey’s office at [email protected] or (202) 224-2742 or Maria Olson in Senator Collins’ office at [email protected] or (202) 224-2523.

Facebook
Twitter
WhatsApp
Email

Latest News

#MillionsMissing Week is Here: #TeachMETreatME in Action!

We are excited to announce the kick-off of #MillionsMissing 2024 – our ongoing campaign to Teach ME and Treat ME by educating medical providers across our nation’s hospital systems and medical schools about myalgic encephalomyelitis (ME).  Throughout the spring, summer and fall, #MEAction teams are hosting 13 medical education events to encourage medical providers to

Read More »

#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024

We are thrilled to share with you that Jaime Seltzer, #MEAction’s Scientific Director, has been selected for TIME100 Health 2024, TIME’s new annual list of 100 individuals who most influenced global health this year! This is a huge honor based on years of work fighting for equity for people with ME.  We intimately know the

Read More »
white rectangle with the words: Interview with Author Lauren Saikkonen in black font. There is an image of her book cover, Invisible Illness on the left hand side. And a photo of Lauren on the right hand side. Lauren is wearing a red sweater and is smiling at the camera.

Interview With Lauren Saikkonen – Author of Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive

#MEAction is once again thrilled to share a new book, Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive, with you by author Lauren Saikkonen! This book is an autobiography that covers Lauren’s entire life, but heavily focuses on her battle with Ehlers-Danlos syndrome, ME, and fibromyalgia.  You can purchase this

Read More »
Scroll to Top