Watch the Westminster Hall debate on PACE

A Westminster Hall debate on the PACE trial will take place on Tuesday, 20th Feb., from 11 to 11:30 a.m. Carol Monaghan MP has secured the debate.

The debate will discuss the flawed science behind PACE, and how it has affected policy on Myalgic Encephalomyelitis (ME) in the UK, forming a pervasive perception of ME as a psychological disease that can be cured with graded exercise therapy (GET) and cognitive behavioural therapy (CBT).

Actions your MP can take right now!

Once your MP learns about PACE and the neglect of people with ME, there are actions they can take right now. Follow-up with your MP following the Westminster Hall debate, and suggest that they take the following actions right away:

  • Your MP can act now by signing the EDM (271) NICE Guideline on ME that removes graded exercise therapy (GET) and Cognitive Behavioural Therapy (CBT) from the NICE guidelines on ME.
  • Encourage your MP to watch the award-winning ME documentary, Unrest, that was shown in the House of Commons, available on Netflix.
Learn more

Read the Parliamentary briefing about the PACE trial here.
Read more about Parliamentary Early Day Motion 271 here.
Read more about the PACE trial here.
Read an article about the politics of ME in the UK here.

Facebook
Twitter
WhatsApp
Email

Latest News

#MillionsMissing Week is Here: #TeachMETreatME in Action!

We are excited to announce the kick-off of #MillionsMissing 2024 – our ongoing campaign to Teach ME and Treat ME by educating medical providers across our nation’s hospital systems and medical schools about myalgic encephalomyelitis (ME).  Throughout the spring, summer and fall, #MEAction teams are hosting 13 medical education events to encourage medical providers to

Read More »

#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024

We are thrilled to share with you that Jaime Seltzer, #MEAction’s Scientific Director, has been selected for TIME100 Health 2024, TIME’s new annual list of 100 individuals who most influenced global health this year! This is a huge honor based on years of work fighting for equity for people with ME.  We intimately know the

Read More »
white rectangle with the words: Interview with Author Lauren Saikkonen in black font. There is an image of her book cover, Invisible Illness on the left hand side. And a photo of Lauren on the right hand side. Lauren is wearing a red sweater and is smiling at the camera.

Interview With Lauren Saikkonen – Author of Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive

#MEAction is once again thrilled to share a new book, Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive, with you by author Lauren Saikkonen! This book is an autobiography that covers Lauren’s entire life, but heavily focuses on her battle with Ehlers-Danlos syndrome, ME, and fibromyalgia.  You can purchase this

Read More »
Scroll to Top