NIH, please create a new RFA for ME/CFS

A group of scientists from around the country have quite recently pointed out the obvious: that ME/CFS is massively underfunded. Tell the NIH to get with the program and
1. stop refusing grants to qualified researchers
2. stop lying about refusing grants to qualified researchers
3. give ME/CFS a rightful home in the neurological disease department

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#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024

We are thrilled to share with you that Jaime Seltzer, #MEAction’s Scientific Director, has been selected for TIME100 Health 2024, TIME’s new annual list of 100 individuals who most influenced global health this year! This is a huge honor based on years of work fighting for equity for people with ME.  We intimately know the

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white rectangle with the words: Interview with Author Lauren Saikkonen in black font. There is an image of her book cover, Invisible Illness on the left hand side. And a photo of Lauren on the right hand side. Lauren is wearing a red sweater and is smiling at the camera.

Interview With Lauren Saikkonen – Author of Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive

#MEAction is once again thrilled to share a new book, Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive, with you by author Lauren Saikkonen! This book is an autobiography that covers Lauren’s entire life, but heavily focuses on her battle with Ehlers-Danlos syndrome, ME, and fibromyalgia.  You can purchase this

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