On May 12th, take a pair of shoes (or several) and put them on your doorstep, lawn, or driveway with a note about what these shoes represent now that you are ill with Myalgic Encephalomyelitis (ME). Take a photo and post it on social media with the hashtag #MillionsMissing. Anyone can participate, whether you are a patient or an ally expressing solidarity.
You might pair the shoes with a sign that expresses what the empty shoes mean to you. Some examples: “I cannot walk to the end of my driveway” or “My brother should be here.”
Imagine if thousands of homes around the world put out their shoes in solidarity with the protestors in the streets.
On May 12th, post selfies on social media (Twitter, Facebook, Instagram, etc) – in your bed, home, wheelchair, at work, wherever you live – to show online the millions who are missing from the protest. Use the hashtag: #MillionsMissing so that we can aggregate all the photos. In addition, you might use #MEAction #mecfs #pwme
You might also consider typing these slogans or holding your own protest sign (whatever paper is handy!) with a slogan in your photo. Here are a few examples to get started:
During the month of May change your profile picture to the #MissingMillions Twibbon.
Promote the hashtag and shoe installation on your social media accounts. Email patients, friends, families, allies who are in the vicinity of the #MillionsMissing rallies.
Tweet the demands and messages that your country is making to your health officials.
Here are some example tweets for the U.S. agencies: NIH /CDC / HHS:
Tweet at NIH:
NIH’s ramp-up for ME/CFS is too slow, too small. #MillionsMissing demand adequate funding for research and clinical trials now. @NIHDirector
Tweet at CDC:
#MillionsMissing demand you remove erroneous information, including CBT and GET, from CDC medical education for ME/CFS NOW. @DrFriedenCDC
Tweet at HHS:
The #MillionsMissing demand HHS provide leadership, oversight and a serious commitment to urgently address ME/CFS. @SecBurwell
Not on Twitter? Phone or call your health officials to make your Demands heard loud and clear.