×

Contact Your Representative Below

Please contact your representative and urge them to send this letter requesting that the House Energy and Commerce Subcommittee on Health hold a hearing to examine the clinical care crisis of ME/CFS. You can do this either by a) using the 1-click Countable tool or b) emailing and calling their office. 

The easiest way to contact the office is to send a message through the 1-click Countable tool below. However, if you can do your own email and phone outreach, this personal approach is more effective – especially if you already have contacted a staff person in the Congressional office and have their email address. See the sample email template and call script below. (And please copy Congress@meaction.net on any emails you send.)

If you have a Republican Representative, please let her/him know that Rep Gosar (R-AZ04) has already submitted the sample letter we provided to request a House Energy and Commerce Health Subcommittee hearing to examine the ME/CFS clinical care crisis. Just knowing that another Republican has already undertaken this action may encourage your Representative to do so also. Rep. Gosar’s signed letter is linked here: http://bit.ly/2L4jv7x

Countable Instructions

If you use Countable tool below, please personalize the message by editing the text directly within the box. Make sure to add your name and zip code to the message. Please note that you will need to register with Countable (very easy). You will get a follow-up email from Countable saying, Welcome to Countable. It will request that you confirm your email address. The message will NOT be sent until you do that!

 

Instructions for Emailing and Calling your House representative:

To find your House representative, go here and enter your zip code: http://www.house.gov/representatives/find/

To email your Representative, simply copy and paste the sample letter below. Modify the first sentence if, for example, you are the parent/spouse/etc of someone with ME/CFS. You can also modify the letter to add or change anything you’d like. If you already have contacted a staff person in the Congressional office and have their email address, you can send your personal email directly to them. And please remember to copy Congress@meaction.net on any email you send so we can track what’s happening.

Dear Representative ______,

I’m writing to you as a constituent afflicted with the severe neuro-immune disease Myalgic Encephalomyelitis, commonly known as Chronic Fatigue Syndrome or ME/CFS, to ask for your support. It would mean so much to me, and to the estimated 1 to 2.5 million other Americans afflicted with this disabling disease, if you and your staff would:

  1. Send this letter to request that the House Energy and Commerce Subcommittee on Health hold a hearing to examine the clinical care crisis of ME/CFS.
  2. Watch Unrest, a profoundly beautiful and moving 90 min. Oscar-shortlisted and Sundance Festival-winning love story about ME/CFS and chronic illness. Please email hannah@meaction.net to request a free film screener. You may also view Unrest on Netflix, iTunes, Amazon, Google Play, or Vimeo here and watch the trailer here. Tell us when you have done this, so we can give you a social media shout-out for listening to your constituents!

We are already receiving strong support on these and other ME/CFS Awareness asks from your Congressional colleagues. For example, Senators Markey (D-MA), Collins (R-ME), King (I-ME), and Van Hollen (D-MD) are co-sponsoring this Senate Resolution to raise awareness about ME/CFS. Please let me know if I may add your assistance on the 2 actions outlined above to our growing list of supporters. Thank you so very much.

With tremendous gratitude,

Your Constituent

Representative Call Instructions:

If you reach someone:

My name is _________. I’m a constituent in (city and zip) and a member of the #MEAction organization. I am calling with an urgent request for Representative ______ to support me and the 1 to 2.5 million other Americans with the disabling neuro-immune disease ME/CFS.

We are already receiving strong support from your Congressional colleagues, including Senators Markey, Collins, King, and Van Hollen, who are co-sponsoring a Senate Resolution to raise awareness about ME/CFS. On the House side, I am asking Representative ___________ and his/her staff to:

  1. Request that the House Energy and Commerce Subcommittee on Health hold a hearing to examine the clinical care crisis of ME/CFS.
  2. Watch Unrest, a beautiful and moving 90 min. Oscar-shortlisted and Sundance Festival-winning love story about ME/CFS and chronic illness. Please email hannah@meaction.net to request a free film screener. You may also view Unrest on Netflix, iTunes, Amazon, Google Play, or Vimeo.

May I be connected to your health legislative assistant to discuss this?

You probably will not be connected to the assistant. If you are, repeat what you said above and go on to the next paragraphs. If you are not connected to the assistant, continue on with the next paragraph.

It would mean the world to me, my family, and other ME/CFS patients in our district to have Representative ____’s support. May I call back tomorrow to find out if Representative ____ will take these 2 small actions to help his constituents with ME/CFS?

If you need to leave a voicemail:

My name is _____, and I am a constituent and a member of #MEAction.  I live in city_____, zip____(I /my loved one suffer(s)) from the debilitating disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome or ME/CFS, which has no known treatment or cure.

I would like Representative _____ to support me and the 1 to 2.5 million other Americans with ME/CFS by requesting a House hearing to examine the clinical care crisis of ME/CFS, andwatching the award-winning documentary UNREST.

Please call me back at ___________. I will email your office a copy of these 2 asks and will call back tomorrow to confirm that you received it. Thank you.