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#MEAction USA Congress Project

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Our Mission

#MEAction’s US Congress project involves a team of dedicated volunteers and staff and thousands of constituents working to achieve these goals:

1. Persuade Congress to pass legislation and appropriate more funding for ME/CFS*

2. Persuade Congress to advocate for ME/CFS needs to the Department of Health and Human Services (HHS) and other federal agencies (HHS includes the National Institutes of Health, Centers for Disease Control, and Food and Drug Administration).

3. Engage Congressional members to support ME/CFS publicly to help build awareness.

#MEAction typically uses the term Myalgic Encephalomyelitis but uses the term ME/CFS for Congressional communications. Congress is more familiar with the term ME/CFS, and it is also the wording used by national agencies (such as the NIH and CDC) with whom Congress interacts.

Get Involved

To get involved with Congressional advocacy, you can  (1) participate in the current actions below and/or (2) contact congress@meaction.net to join our team of volunteer advocates, and (3) join #MEAction USA or join your state group.

Current Actions

Ask Your Senators Now To Support Appropriations Actions! Read more here!

Recent Wins
  • A historic, bipartisan Senate Resolution, S.Res. 225, passed in honor of International ME/CFS Awareness Day.
  • On Dec. 17,2018, 14 Senators and 28 Congressional Representatives signed this bipartisan letter sent to the U.S. Department of Health and Human Services (HHS)  in support of people with ME/CFS.
Did you participate in a call-to-action? Let us know!

Did you participate in a recent congressional call-to-action? Did you hear back from your elected official? Please fill out this form to tell us about it. The information you provide will help us improve our overall strategy. If you have questions you can contact congress@meaction.net.

History of #MEAction Congressional Team

#MEAction has been engaging in Congressional advocacy since the organization’s launch in 2015. We have collaborated with the Solve ME/CFS Initiative (SMCI), the Massachusetts ME/CFS & FM Association, and the US Action Working Group. Our first tangible accomplishment was succeeding several times in restoring $5.4 million in ME/CFS funding for the Centers for Disease Control that had been proposed for elimination. Then, through many phone and in- person meetings with Congressional offices and “calls to action” for the community to contact their members’ offices, we

  • Convinced members of Congress to write a bipartisan letter to the NIH in 2016 signed by 55 Representatives, and another bipartisan letter to the Department of Health and Human Services in 2018 signed by 42 Senators and Representatives, to support ME/CFS patients and research
  • Convinced 130 members of Congress to write to the Appropriations Committees in 2016, 2017 and 2018 to request that ME/CFS directives be included in the appropriations bills
  • Succeeded in having a bipartisan ME/CFS Awareness Resolution introduced in the Senate in 2018.
Congressional Advocacy  Toolkit

We have created a comprehensive toolkit for undertaking congressional advocacy. Use these tools to “go deeper” into advocacy work, especially if you are getting ready to set up a meeting with a Congressional office. (Note, you don’t need to read this manual in order to participate in our calls-to-action above.) Each chapter has links to many other resources to help you. Some examples from the toolkit:

Read the Toolkit

 

Need Help?  

If you need support for an upcoming meeting or call with Congress, want to know about previous contacts with your members of Congress, or have a question, we’re here to help.  Contact us at congress@meaction.net and someone from our team will be in touch.  


News & Past Actions

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Historic Congressional Resolutions Pass for ME!

Senate Resolution passed! This is a great victory for all people with ME …
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Urgent – Contact Your Senators Now to Co-sponsor the ME/CFS Awareness Day Resolution

Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness Day Resolution NOW!

Although the original co-sponsors would like …
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What A Day…

What A Day…

ME Advocacy Day 2019 was a huge success!

#MEAction and Solve ME/CFS Initiative were very excited to partner for …
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Advocacy Week Local Actions

***UPDATE: THIS ACTION IS NOW OVER***

ADVOCACY WEEK LOCAL ACTIONS

As many of you know, Advocacy day is April 3rd in DC …
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Ask Your Senators to Increase Funding for ME Research and Education

***UPDATE: THIS ACTION IS NOW OVER***

Senator Markey is currently asking for support from his fellow Senators for TWO requests that can …
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Increased Funding for ME Research and Education

***UPDATE: THIS ACTION IS NOW OVER***

Congressmembers Zoe Lofgren and Anna Eshoo, are currently asking for support from their fellow House Members …
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Advocate for ME on the Hill! Only One Week left to Register!

You still have one week left to register for Advocacy Day 2019 in Washington, DC!
You may be trying to decide whether or …
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Get involved: support science and advocacy this April

April is going to be an incredibly exciting month for advocacy and for research into ME!

The NIH is hosting a …
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Register Now for ME/CFS Advocacy Week 2019!

Listen to the article:

#MEAction and Solve ME/CFS Initiative (SMCI) are excited to announce a joint partnership for ME/CFS Advocacy Week …
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A Year in Review: Celebrating the 2018 Achievements of Our Community

2018 has been a big year at #MEAction!
Thank you to all of you who have put forth immense efforts to …
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