#MEAction USA Congress Project

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Our Mission

#MEAction’s US Congress project involves a team of dedicated volunteers and staff and thousands of constituents working to achieve these goals:

  • Persuade Congress to pass legislation and appropriate more funding for ME/CFS*
  • Persuade Congress to advocate for ME/CFS needs to the Department of Health and Human Services (HHS) and other federal agencies (HHS includes the National Institutes of Health, Centers for Disease Control, and Food and Drug Administration).
  • Engage Congressional members to support ME/CFS publicly to help build awareness.

#MEAction typically uses the term Myalgic Encephalomyelitis but uses the term ME/CFS for Congressional communications. Congress is more familiar with the term ME/CFS and it is also the wording used by national agencies (such as the NIH and CDC) with whom Congress interacts.

Get Involved

To get involved with Congressional advocacy, you can  (1) participate in the current actions below and/or (2) contact congress@meaction.net to join our team of volunteer advocates, and (3) join #MEAction USA or join your state group.

Current Actions
  1. Ask Congress to establish a new ME/CFS Federal Advisory Committee through congressional action. We are reaching out to Congress after the Department of Health and Human Services dissolved the Chronic Fatigue Syndrome Advisory Committee (CFSAC) suddenly and without warning, saying that the committee had accomplished its duties and was no longer needed. Read more.  Join the effort to contact your Congressional representative led by the Solve ME/CFS Initiative using their one-click tool.
  2. Ask your Representative to send a letter requesting the House Energy and Commerce Subcommittee on Health hold a hearing to examine the clinical care crisis of ME/CFS. Contact your Representative

Did you participate in a recent congressional call-to-action? Did you hear back from your elected official? Please fill out this form to tell us about it. The information you provide will help us improve our overall strategy. If you have questions you can contact congress@meaction.net.

Congressional Advocacy  Toolkit

We have created a comprehensive toolkit for undertaking congressional advocacy. Use these tools to “go deeper” into advocacy work, especially if you are getting ready to set up a meeting with a Congressional office. (Note, you don’t need to read this manual in order to participate in our calls-to-action above.) Each chapter has links to many other resources to help you. Some examples from the toolkit:

Read the Toolkit


Need Help?  

If you need support for an upcoming meeting or call with Congress, want to know about previous contacts with your members of Congress, or have a question, we’re here to help.  Contact us at congress@meaction.net and someone from our team will be in touch.  

News & Past Actions

U.S. House of Rep. Supports More Funding for NIH

We applaud the U.S. House of Representatives for its support to increase funding for the National Institutes of Health (NIH). Last ...
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Learn how to Lobby Congress: Read our Toolkit

Since its inception three years ago, the #MEAction Congressional team has worked hard to build relationships with members of Congress ...
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#MEAction Welcomes U.S. Advocacy Manager

We at #MEAction are so excited to welcome Erin Roediger as our new U.S. Advocacy Manager! We are thrilled that with ...
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Ten Organizations Ask Congress to Create Legislation for ME/CFS

On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions ...
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Advocacy Round-up – A Season of Protest and Petition

The #MEAction community has dug in deep this fall to undertake the incredibly important work - and heavy lifting - ...
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U.S. Congress Introduces Resolution for ME

Yesterday, the U.S. Congress introduced a resolution in the Senate to show support for research and medical education for Myalgic ...
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Ten Percent of U.S. House Representatives Show Support for ME

Yes, you read right!  Thanks to the incredible community outreach over the course of just a few days, TEN percent ...
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21st Century Cures Act Passes House with Overwhelming Bipartisan Support

21st Century Cures Act Passes House with Overwhelming Bipartisan Support ME/CFS advocates have been eagerly awaiting passage of the 21st ...
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