#MEAction USA Congress Project

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Our Mission

#MEAction’s US Congress project involves a team of dedicated volunteers and staff and thousands of constituents working to achieve these goals:

  • Persuade Congress to pass legislation and appropriate more funding for ME/CFS*
  • Persuade Congress to advocate for ME/CFS needs to the Department of Health and Human Services (HHS) and other federal agencies (HHS includes the National Institutes of Health, Centers for Disease Control, and Food and Drug Administration).
  • Engage Congressional members to support ME/CFS publicly to help build awareness.

#MEAction typically uses the term Myalgic Encephalomyelitis but uses the term ME/CFS for Congressional communications. Congress is more familiar with the term ME/CFS and it is also the wording used by national agencies (such as the NIH and CDC) with whom Congress interacts.

Get Involved

To get involved with Congressional advocacy, you can  (1) participate in the current actions below and/or (2) contact congress@meaction.net to join our team of volunteer advocates, and (3) join #MEAction USA or join your state group.

Recent Wins
  • Thanks to another strong turnout from the ME/CFS community, 14 Senators and 28 Congressional Representatives joined together to sign this bipartisan letter sent to the U.S. Department of Health and Human Services (HHS) on Dec. 17,2018 in support of people with ME/CFS.
Current Actions

Stay tuned!  We’re making great plans for actions to take in the new Congress.


Did you participate in a recent congressional call-to-action? Did you hear back from your elected official? Please fill out this form to tell us about it. The information you provide will help us improve our overall strategy. If you have questions you can contact congress@meaction.net.

Congressional Advocacy  Toolkit

We have created a comprehensive toolkit for undertaking congressional advocacy. Use these tools to “go deeper” into advocacy work, especially if you are getting ready to set up a meeting with a Congressional office. (Note, you don’t need to read this manual in order to participate in our calls-to-action above.) Each chapter has links to many other resources to help you. Some examples from the toolkit:

Read the Toolkit


Need Help?  

If you need support for an upcoming meeting or call with Congress, want to know about previous contacts with your members of Congress, or have a question, we’re here to help.  Contact us at congress@meaction.net and someone from our team will be in touch.  

News & Past Actions

A Year in Review: Celebrating the 2018 Achievements of Our Community

2018 has been a big year at #MEAction!  Thank you to all of you who have put forth immense efforts to ...
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Advocacy Round-Up: End-of-Year, 2018

Our community's advocacy work end with a big finale with our meeting with the director of the U.S. National Institutes ...
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Holiday Win: 42 Members of Congress Sign on to Support People with ME/CFS

  Thanks to another strong turnout from the ME/CFS community, 14 Senators and 28 Congressional Representatives joined together to sign this ...
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Advocacy Round-up – A Season of Protest and Petition

The #MEAction community has dug in deep this fall to undertake the incredibly important work - and heavy lifting - ...
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Ten Organizations Ask Congress to Create Legislation for ME/CFS

On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions ...
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#MEAction Welcomes U.S. Advocacy Manager

We at #MEAction are so excited to welcome Erin Roediger as our new U.S. Advocacy Manager! We are thrilled that with ...
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Learn how to Lobby Congress: Read our Toolkit

Since its inception three years ago, the #MEAction Congressional team has worked hard to build relationships with members of Congress ...
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U.S. House of Rep. Supports More Funding for NIH

We applaud the U.S. House of Representatives for its support to increase funding for the National Institutes of Health (NIH). Last ...
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U.S. Congress Introduces Resolution for ME

Yesterday, the U.S. Congress introduced a resolution in the Senate to show support for research and medical education for Myalgic ...
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#MEAction Volunteer of the Month: Congressional Advocate

    The success of #MEAction - to achieve health equity for people with myalgic encephalomyelitis - is in the hands of ...
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