#MEAction’s US Congress project involves a team of dedicated volunteers and staff and thousands of constituents working to achieve these goals:
* #MEAction typically uses the term Myalgic Encephalomyelitis but uses the term ME/CFS for Congressional communications. Congress is more familiar with the term ME/CFS, and it is also the wording used by national agencies (such as the NIH and CDC) with whom Congress interacts.
To get involved with Congressional advocacy, you can (1) participate in the current actions below and/or (2) contact firstname.lastname@example.org to join our team of volunteer advocates, and (3) join #MEAction USA or join your state group.
Thanks to another strong turnout from the ME/CFS community, 14 Senators and 28 Congressional Representatives joined together to sign this bipartisan letter sent to the U.S. Department of Health and Human Services (HHS) on Dec. 17,2018 in support of people with ME/CFS.
Did you participate in a recent congressional call-to-action? Did you hear back from your elected official? Please fill out this form to tell us about it. The information you provide will help us improve our overall strategy. If you have questions you can contact email@example.com.
#MEAction began doing Congressional advocacy very quickly at its inception, both on our own and in collaboration with the Solve ME/CFS Initiative (SMCI), the Massachusetts ME/CFS & FM Association, and the US Action Working Group. Our first tangible accomplishment was succeeding several times in restoring $5.4 million in ME/CFS funding for the Centers for Disease Control that had been proposed for elimination. Then, through many phone and in- person meetings with Congressional offices and “calls to action” for the community to contact their members’ offices, we
We have created a comprehensive toolkit for undertaking congressional advocacy. Use these tools to “go deeper” into advocacy work, especially if you are getting ready to set up a meeting with a Congressional office. (Note, you don’t need to read this manual in order to participate in our calls-to-action above.) Each chapter has links to many other resources to help you. Some examples from the toolkit:Read the Toolkit
If you need support for an upcoming meeting or call with Congress, want to know about previous contacts with your members of Congress, or have a question, we’re here to help. Contact us at firstname.lastname@example.org and someone from our team will be in touch.