Covid-19 Resources for People with ME


#MEAction USA

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Actions you can take now to advance the fight for health equality:

  1. Tell NIH their research plan is #NotEnough4ME. Participate in Cards for Koroshetz here. Join our virtual protest here. Sign the petition here.
  2. Ask Your Senators Now To Support Appropriations Actions! Read more here!
  3. Tell your medical providers to watch Unrest for Continuing Education credit! There are 3 ways that you can do this – read more!
  4. Stop the U.S. FDA from banning compounded medications that help people with ME – email the committee.
  5. Donate: to support #MEAction’s movement-building and advocacy work

Read more about recent actions involving the NIH, CDC, HHS and FDA.

How to get involved

To get more involved in advocacy, education and outreach join one of our state Facebook groups below. And, find out more about our #MEAction State Chapters: ARIZONA | CALIFORNIA | COLORADO | FLORIDA | GEORGIA | NEW YORK | TEXAS.

You can also make an appointment to talk to a community organizer if you have questions about how best to get involved.

#MEAction USA

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Latest US News & Actions

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#MEAction Medical Travel Scholarship Award Winners

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#MEAction Medical Travel Scholarship

Because of the generous donation from a private family foundation, #MEAction has been able to provide travel scholarships to medical practitioners and medical students to attend the National Institutes of Health conference on ME this Thursday and … Read More

What A Day…

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What A Day…

ME Advocacy Day 2019 was a huge success!

#MEAction and Solve ME/CFS Initiative were very excited to partner for this year’s Advocacy Day and we were blown away by everyone’s response and involvement. With over 200+ people registered to … Read More

Advocacy Week Local Actions

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As many of you know, Advocacy day is April 3rd in DC. Activists will be traveling from around the United States to have meetings with their elected officials to demand recognition and action for people with ME … Read More

Ask Your Senators to Increase Funding for ME Research and Education

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Senator Markey is currently asking for support from his fellow Senators for TWO requests that can increase funding for ME!

These requests would include:

1) Request $9.9 million for ME programs at the CDC (Labor-HHS committee)

2) Add ME to the Peer-Reviewed Medical … Read More

Represent #MEAction at the NIH Conference

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The National Institutes of Health conference on myalgic encephalomyelitis (ME) research is fast approaching on April 4th-5th in Bethesda, MD, and #MEAction will be hosting a table to represent our community at the conference.

We are looking for volunteers attending the … Read More

Increased Funding for ME Research and Education

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Congressmembers Zoe Lofgren and Anna Eshoo, are currently asking for support from their fellow House Members for TWO requests that can increase funding for ME!

These requests would include:

1) Request $9.9 million for ME programs at the CDC (Labor-HHS committee)

2) Add … Read More

Carol Head of SMCI to step down

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After five years of advocacy leadership, Carol Head, the President of Solve ME/CFS (SMCI), will be stepping down from her position for health reasons.

Head, a graduate of Wellesley and Stanford’s School of Business, contracted ME after a viral infection and … Read More

Enrolling: NIH Intramural Study

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The objective of this research study is to look in-depth at the clinical and biological characteristics of ME/CFS. Participants with ME/CFS are inpatients at the clinical center at NIH for approximately two weeks on their first visit and another two … Read More

Here’s What to Expect for ME Advocacy Day 2019

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Last day to register to attend Advocacy Day in Washington, DC on April 2-3rd!

If you are wondering if attending Advocacy Day is for you, here is a document that breakdowns what those two days will look like. The document provides … Read More

Advocate for ME on the Hill! Only One Week left to Register!

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You still have one week left to register for Advocacy Day 2019 in Washington, DC!
You may be trying to decide whether or not you should come (and, please, put your health first) or send a loved one in your place, so we … Read More


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