#MEAction USA

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Actions you can take now to advance the fight for health equality:

  1. Tell your medical providers to watch Unrest for Continuing Education credit! There are 3 ways that you can do this – read more!
  2. Urge Netflix to remove the docuseries, Afflicted, from its site. More than 40 writers, activists, artists, filmmakers, physicians and scientists have written an open letter expressing deep concern about Afflicted’s unethical treatment of its subjects, and the series many factual errors and omissions. Join in solidarity and sign the petition.
  3. Ask your U.S. House representative to hold a hearing on ME. 
    We are working on an important action to build support for ME in the House, but we need your help to reach out to your representatives to let them know this action is important to their constituents. Contact your House representatives today: 

  4. Donate: to support #MEAction’s movement-building and advocacy work

Read more about recent actions involving the NIH, CDC, HHS and FDA.

How to get involved

To get more involved in advocacy, education and outreach join #MEAction USA or find your state group. You can also make an appointment to talk to a community organizer if you have questions about how best to get involved.

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Latest US News & Actions

Ten Organizations Ask Congress to Create Legislation for ME/CFS

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On Friday, November 2nd, #MEAction, the Solve ME/CFS Initiative, and eight other ME/CFS organizations sent a letter to our champions in the House of Representatives - Representatives Eshoo (CA18),  Lofgren (CA19), McGovern (MA02), and Raskin (MD08) -  requesting that they ... Read More

Alphabet Soup: Read the Latest about our U.S. Health Agencies and M.E.

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There are a lot of moving pieces to keep track of as we push for our U.S. federal agencies to provide fair and adequate treatment to people with myalgic encephalomyelitis (ME). Together, our community continues to take action to fight ... Read More

Stop the FDA from Banning Compounded Medications that Help People with ME – Take Action!

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For the past 35 years the FDA has neglected to bring meaningful treatments to market for people with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS). The lack of FDA-approved drugs means many patients rely on compounded medications to help improve ... Read More

UPDATE: Cochrane Has NOT Removed “Exercise Therapy for CFS” Review

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It appears that Cochrane will NOT temporarily remove a review from its database that claims exercise therapy is effective for chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME), as a report in Reuters had indicated last week. Instead, Cochrane editors have ... Read More

Mary Gelpi Sends 50K Petition to NIH Director, Francis Collins

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Mary Gelpi first published this post on her blog, 25 Pills a Day. Mary launched a petition asking the director of the U.S. National Institutes of Health, Francis Collins, to increase funding to 100 million annually for ME/CFS. She just ... Read More

Cochrane Temporarily Removes Review of “Exercise Therapy for CFS”

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Cochrane has temporarily removed a review from its database that claims exercise therapy is effective for chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME). Cochrane is a database of medical reviews and meta-analyses, which medical providers around the world rely ... Read More

New York #MEAction Protests Per Fink at Columbia University – Here’s what happened

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The protest against the Danish physician, Per Fink, last week demonstrates how our community takes action in a variety of ways to fight for people with myalgic encephalomyelitis (ME). 1) #MEAction New York organized a protest outside the conference where ... Read More

It has been an Intense Week!

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It Has Been A HUGE Week in the U.S.! This last week has been a bit of a whirlwind – we've never been busier! It's been a week of advancing the cause of health equality for people with myalgic encephalomyelitis through the launch of ... Read More

Join the fight against stigma and pseudoscience in New York

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This weekend, the New York State Psychiatric Institute is hosting a conference on psychosomatic illness at Columbia University Medical Center -- and they invited Per Fink to speak.  If you have watched Unrest, you know that Fink’s clinic was responsible ... Read More


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ACTIVISTS PROTEST SPEAKER AT COLUMBIA UNIVERSITY CONFERENCE Human Rights Abuser Per Fink is Not Welcome in New York  Follow the story at: @meactnet and #ScienceNotStigma FOR IMMEDIATE RELEASE October 18, 2018- New York, NY Activists with NY #MEAction  will converge on Columbia University Saturday, October 20that 8:00 a.m ... Read More