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#MEAction USA

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Current US calls to action
  1. Ask Congress to support people with ME. Using our one-click software, it’ll only take a few seconds. Contact Congress now.
  2. Call or email the NIH director, Francis Collins, to request a meeting to discuss our letter outlining a strategic plan for ME.
  3. Donate: to support #MEAction’s movement-building and advocacy work

How to get involved

To get more involved in advocacy, education and outreach join #MEAction USA or find your state group. You can also make an appointment to talk to a community organizer if you have questions about how best to get involved.

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Latest US News & Actions

U.S. Call-to-action: Tell Collins to Respond to our Letter

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NIH director, Francis Collins, has not yet responded to our letter demanding that he take specific steps within the next 12 months towards achieving a diagnostic test, clinical trials and treatments for myalgic encephalomyelitis. We sent the the letter on May 24th. We need ... Read More

Clarification about our Senate Resolution for ME/CFS

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This is a letter to the community from #MEAction, Solve ME/CFS, and MassCFIDS about our recent U.S. congressional work. Dear Friends, We want to clarify an important issue about our recent advocacy work. After two years of fierce advocacy by our community, ... Read More

US: Watch the CFS Advisory meeting – this Wed. and Thurs.

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Representatives from across federal agencies will convene for the next two days - tomorrow, June 20th and June 21st - for the bi-annual Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting. CFSAC is an important committee that provides advice and recommendations to ... Read More

U.S. House of Reps. Supports Increased Funding for NIH

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We applaud the U.S. House of Representatives for its support to increase funding for the National Institutes of Health (NIH). Last week, the House Appropriations Committee released its draft funding bill that raises spending for the NIH by $1.25 billion (3 percent) to $38.3 billion ... Read More

U.S. House of Rep. Supports More Funding for NIH

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We applaud the U.S. House of Representatives for its support to increase funding for the National Institutes of Health (NIH). Last week, the House Appropriations Committee released its draft funding bill that raises spending for the NIH by $1.25 billion (3 percent) to $38.3 ... Read More

PBS Audience Award: Vote for Unrest

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We are thrilled to announce that Unrest is in the running for the 2017-18 Independent Lens Audience Award! It was an honor to have Unrest premiere on PBS | Independent Lens this past January and it would mean the world ... Read More

Make yourself Heard before U.S. Health Officials – Submit your Comment to CFSAC by June 13

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You showed up for #MillionsMissing, now is the time to show up before our federal agencies to demand that they take urgent and strategic action for people with Myalgic Encephalomyelitis. The Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold its ... Read More

Victory for ME Disability Claim – U.S. Court Upholds Plaintiff’s Lawsuit After Being Denied Disability

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Former Washington Post science reporter, Brian Vastag, won a federal lawsuit against Prudential Insurance after the insurance company dropped his short-term disability benefits and denied his bid for long-term ones. Vastag’s lawyers said that the ruling should make it harder for ... Read More

U.S. Votes to Track ME/CFS on BRFSS Survey

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Back in March, we urged you to take action and inform your state health officials and departments to begin tracking ME/CFS as part of the their annually-conducted Behavioral Risk Factor Surveillance System (BRFSS). Many chronic health conditions are tracked using this system.  ... Read More

Thousands sign letter to be delivered to Francis Collins

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On May 24th, 2018, we delivered this 580-page LETTER to Francis Collins, with over 7,000 signatures, photos, and personal comments. We are demanding: A Diagnostic Test, Clinical Trials, and Treatments We asked Francis Collins to meet with us, and we need answers soon. We also ... Read More