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#MEAction USA

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Actions you can take now to advance the fight for health equality:

  1. Email Your Representative To Sign Onto Appropriations Letters! Please contact your Representative now and urge them to sign onto two appropriations letters by Wednesday, March 27Read more. Take action by emailing and calling your Representative.
  2. Register for ME/CFS Advocacy Week & DC Lobby Day 2019! Let’s take Congress by storm for ME! The week of meetings, virtual call-in actions and online events will take place from April 1 – 7th with Lobby Day taking place on April 3. Read moreRegister now.
  3. Tell your medical providers to watch Unrest for Continuing Education credit! There are 3 ways that you can do this – read more!
  4. Stop the U.S. FDA from banning compounded medications that help people with ME – email the committee.
  5. Urge Netflix to remove the docuseries, Afflicted, from its site. More than 40 writers, activists, artists, filmmakers, physicians and scientists have written an open letter expressing deep concern about Afflicted’s unethical treatment of its subjects, and the series many factual errors and omissions. Join in solidarity and sign the petition.
  6. Donate: to support #MEAction’s movement-building and advocacy work

Read more about recent actions involving the NIH, CDC, HHS and FDA.


How to get involved

To get more involved in advocacy, education and outreach join #MEAction USA or find your state group. You can also make an appointment to talk to a community organizer if you have questions about how best to get involved.

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Latest US News & Actions

Increased Funding for ME Research and Education

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  Congressmembers Zoe Lofgren and Anna Eshoo, are currently asking for support from their fellow House Members for TWO requests that can increase funding for ME! These requests would include: 1) Request $9.9 million for ME programs at the CDC (Labor-HHS committee) 2) Add ... Read More

Carol Head of SMCI to step down

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After five years of advocacy leadership, Carol Head, the President of Solve ME/CFS (SMCI), will be stepping down from her position for health reasons. Head, a graduate of Wellesley and Stanford's School of Business, contracted ME after a viral infection and ... Read More

Enrolling: NIH Intramural Study

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Overview The objective of this research study is to look in-depth at the clinical and biological characteristics of ME/CFS. Participants with ME/CFS are inpatients at the clinical center at NIH for approximately two weeks on their first visit and another two ... Read More

Here’s What to Expect for ME Advocacy Day 2019

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Last day to register to attend Advocacy Day in Washington, DC on April 2-3rd! If you are wondering if attending Advocacy Day is for you, here is a document that breakdowns what those two days will look like. The document provides ... Read More

Advocate for ME on the Hill! Only One Week left to Register!

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You still have one week left to register for Advocacy Day 2019 in Washington, DC! You may be trying to decide whether or not you should come (and, please, put your health first) or send a loved one in your place, so we ... Read More

Announcing #MillionsMissing 2019! Join us!

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Listen to the article:   We are thrilled to announce #MillionsMissing 2019! This May, we will take to the streets - or demonstrate from our beds - to show the world we are here, we are the #MillionsMissing, we will continue to ... Read More

Get involved: support science and advocacy this April

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April is going to be an incredibly exciting month for advocacy and for research into ME! The NIH is hosting a conference on ME in early April along with a Young Investigators Workshop specifically geared towards early-career investigators with interest in ... Read More

Amy Carlson – an Ally to the ME Community

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Listen to the article:   Allies are critical to the success of any movement and even more so in the case of people with myalgic encephalomyelitis (ME). So many people with ME are bedridden or housebound and unable to participate in some ... Read More

HOMELESS: How AMMES is Keeping People with ME in their Homes

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Listen to the article:   Erica Verrillo is President of the American ME and CFS Society (AMMES) | Photo by ALACHUA COUNTY /Flickr CC BY 2.0 Years ago, Dr. Bell made the observation that many people currently living in cars most likely had ... Read More

HUGE Event for ME in Boston

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Follow Rivka Solomon on Twitter: @RivkaTweets "Now that's the kind of event that gives hope. Real hope. Tangible, actionable hope. It's infuriating that the standard of "care" for #Millions Missing is mostly built on disinformation. This kind of event is how ... Read More