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Browse Actions: United States

Make yourself Heard before U.S. Health Officials – Submit your Comment to CFSAC by June 13

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You showed up for #MillionsMissing, now is the time to show up before our federal agencies to demand that they take urgent and strategic action for people with Myalgic Encephalomyelitis. The Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold its ... Read More

Victory for ME Disability Claim – U.S. Court Upholds Plaintiff’s Lawsuit After Being Denied Disability

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Former Washington Post science reporter, Brian Vastag, won a federal lawsuit against Prudential Insurance after the insurance company dropped his short-term disability benefits and denied his bid for long-term ones. Vastag’s lawyers said that the ruling should make it harder for ... Read More

U.S. Votes to Track ME/CFS on BRFSS Survey

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Back in March, we urged you to take action and inform your state health officials and departments to begin tracking ME/CFS as part of the their annually-conducted Behavioral Risk Factor Surveillance System (BRFSS). Many chronic health conditions are tracked using this system.  ... Read More

Thousands sign letter to be delivered to Francis Collins

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On May 24th, 2018, we delivered this 580-page LETTER to Francis Collins, with over 7,000 signatures, photos, and personal comments. We are demanding: A Diagnostic Test, Clinical Trials, and Treatments We asked Francis Collins to meet with us, and we need answers soon. We also ... Read More

Victory for #MEAction NY Activists: State Publishes Webpage about ME

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The New York State Department of Health has recently established a new webpage about Myalgic Encephalomyelitis (ME) on its website, thanks to the hard work of #MEAction activists. New York is one of only three states in the U.S. that ... Read More

Open Medicine Foundation Announces Harvard Collaborative Research Center

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Today, the Open Medicine Foundation announced that it had funded a new ME/CFS Collaborative Research Center at Harvard under Ron Tompkins and Wenzhong Xiao, to the tune of $1.8 million dollars. The Center will include with Massachusetts General Hospital (MGH), Brigham ... Read More

The NIH Plan for ME is Dismal

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Occupy M.E. describes the NIH's current plan to address the crisis of Myalgic Encephalomyelitis as "do a little and wait." Blogger Jennie Spotila describes the agency's plan, which was found buried in the NIH 2019 budget request sent to Congress, as ... Read More

U.S. Congress Introduces Resolution for ME

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Yesterday, the U.S. Congress introduced a resolution in the Senate to show support for research and medical education for Myalgic Encephalomyelitis (ME) ... Read More

The Global Impact of #MillionsMissing

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The impact of #MillionsMissing 2018 was phenomenal. Protestors took to the streets in 100 countries across the world with demonstrations taking place in North America, South America, Europe, the United Kingdom, South Africa and Asia. Along with people taking action ... Read More

OMF shares a Patient’s Reflection on UNREST

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This anonymous patient was truly moved by viewing Unrest and is sharing this personal reflection to encourage action ... Read More