×

Browse Actions: United States

HOMELESS: How AMMES is Keeping People with ME in their Homes

/ by / 2 Comments
Listen to the article:   Erica Verrillo is President of the American ME and CFS Society (AMMES) | Photo by ALACHUA COUNTY /Flickr CC BY 2.0 Years ago, Dr. Bell made the observation that many people currently living in cars most likely had ... Read More

HUGE Event for ME in Boston

/ by / 0 Comment
Follow Rivka Solomon on Twitter: @RivkaTweets "Now that's the kind of event that gives hope. Real hope. Tangible, actionable hope. It's infuriating that the standard of "care" for #Millions Missing is mostly built on disinformation. This kind of event is how ... Read More

Apply to Attend the NIH Conference with a Scholarship from #MEAction!

/ by / 0 Comment
#MEAction is currently accepting applications from medical students and practicing medical professionals to attend the National Institutes of Health meeting on myalgic encephalomyelitis (ME) research on April 4th-5th, 2019 in Bethesda, MD. The application is due at 5 p.m. EST on February 22nd. The goal ... Read More

Register Now for ME/CFS Advocacy Week 2019!

/ by / 2 Comments
Listen to the article:  #MEAction and Solve ME/CFS Initiative (SMCI) are excited to announce a joint partnership for ME/CFS Advocacy Week & DC Lobby Day 2019!  The week of meetings with representatives, call-in actions and online events will take place from Monday, April ... Read More

How to Represent ME at the Women’s March

/ by / 0 Comment
#MEAction Colorado is organizing a small cohort to join the Women’s March in Denver this Saturday, Jan. 19th. (See details.) We plan to walk the shorter, ADA-friendly route with empty wheelchairs displaying signs that say, “Too ill to be here,” ... Read More

Enrolling: NIH Focus Group on PEM

/ by / 11 Comments
Overview The NIH is currently looking for volunteers with ME/CFS to participate in a focus group that will be used to learn more about PEM in daily life as well as to hear about your experiences with Cardio Pulmonary Exercise Testing ... Read More

A Year in Review: Celebrating the 2018 Achievements of Our Community

/ by / 3 Comments
2018 has been a big year at #MEAction!  Thank you to all of you who have put forth immense efforts to improve the lives of people with myalgic encephalomyelitis (ME). #MEAction has grown over the past year in leaps and bounds, and ... Read More

#MEAction Responds to NIH

/ by / 1 Comment
As many of you know, #MEAction activists for myalgic encephalomyelitis (ME) met with the director of the National Institutes of Health (NIH), Dr. Francis Collins, on December 7 to discuss accelerating research in order to more rapidly provide diagnostics and ... Read More

Advocacy Round-Up: End-of-Year, 2018

/ by / 0 Comment
Our community's advocacy work end with a big finale with our meeting with the director of the U.S. National Institutes of Health (NIH)!  Catch up on the latest global news from the past few months. U.S. NIH #MEAction representatives met with the National ... Read More

Community Roundup – End-Of-Year, 2018

/ by / 0 Comment
As always, our community continues to amaze us with its tenacity, creativity, intellect, hard work and generosity. Enjoy a round-up of some of the community happenings these past few months where people with myalgic encephalomyelitis (ME) around the world continue ... Read More