Covid-19 Resources for People with ME

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Browse Actions: Global

Winners of the #MillionsMissing Art competition

We're excited to announce the winners of the #MillionsMissing Art competition. 1st prize went to CJ Janzen from Cambridge, Ontario who made two amazing songs about ME. Listen here: Myalgic Encephalomyelitis Song - Rough by CJ Janzen | Free Listening on SoundCloud A Song For M.E. by CJ Janzen | ...

Canada: Find CIHR qualified grant reviewers!

When a grant proposal is submitted, a panel of experts will examine it for merit before making a final decision.  But what happens when those 'experts' deny the very existence of the disease they purport to study? Memorably, a recent grant proposal was submitted to Canada's CIHR (Canadian Institutes of ...

#SockItToMECFS with BHC’s new fundraising challenge!

Bateman Horne Center launches the #SockItToMECFS Challenge. Wear your wildest and wackiest socks to raise awareness and funds for advancing ME/CFS diagnosis and care. Challenge your friends to do the same ...

Ramsay Award Winners and Webinar with Dr. Zaher Nahle

Do you have questions about ME/CFS research? Two weeks from today, the last webinar of this year will be held on December 15th with Zaher Nahle, PhD, MPA, vice president for research and scientific programs at Solve ME/CFS Initiative. Send your questions about upcoming research programs to [email protected] To sign ...

Donate to Karina’s Legal Fund

Over the past several years, many of us with and without ME have looked on in horror as Karina Hansen was forcibly removed from her home and institutionalized.  This was in part due to Denmark's decision to rename myalgic encephalomyelitis "bodily distress syndrome" and classify it as a psychological illness ...

Take Lenny Jason’s survey on emotional impact of having ME

Lenny Jason's recent research paper, Mortality in patients with ME and CFS, found patients are significantly at risk for earlier all-cause mortality with the top three causes of death being suicide, cardiovascular problems, and cancer.  Jason is well-known for his epidemiology work, with over 80 articles on ME; he was ...

Cast your vote today help fund epigenetic research for ME

Action CIND is competing in the Aviva contest for $100,000 to advance ME and FM research in Canada. REGISTER at http://avivacommunityfund.org, CAST 18 VOTES TODAY at https://avivacommunityfund.org/voting/project/view/16-356, and SHARE contest information to help them ...

#MillionsMissing Crafts Competition

#MillionsMissing Crafts Competition We want to have fun while we work for equal treatment for ME sufferers! Win prizes! Submit photos and pattern of a crochet - or knitting project with the #MillionMissing logo. ( Also with a picture of the finished product). We pick three winners receiving a prize ...

Join us in the #isignedfive challenge!

Want a way to raise your voice this #MillionsMissing but don’t know how? Perhaps you’re unable to attend a protest in person, or want to do a little something extra to make a difference. The stopGET petition against graded exercise therapy trials is one of the most vital actions circulating ...

Sign the UK and Global Petition: It’s time to stop GET trials for ME/CFS

After months of hard work from #MEAction, #MEAction Network UK, and many others including advocates, government officials, lawyers, and PACE experts, a group of concerned global citizens have crafted a petition to the UK government to stop graded exercise therapy trials in ME/CFS.  If this petition reaches 10,000 signatures from ...