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Browse Actions: Featured actions

Mobilize your Medical Providers to Watch Unrest for Credit

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We are so thrilled to announce that US healthcare providers – including doctors, nurses, pharmacists, therapists and social workers – can now watch Unrest and receive continuing education credits through the American Medical Women’s Association and Indiana University School of Medicine, in partnership with #MEAction. Healthcare providers can attend a live, continuing education ...
young white woman in group of protestors turns head to look into camera. Holds a sign "Millions Suffering!"

Per Fink is coming to US this week! Here’s 3 actions you can take

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The Danish physician, Per Fink, is traveling to the United States to speak about his unscientific and dangerous idea that myalgic encephalomyelitis (ME) is a psychosomatic illness. Per Fink has been invited to speak at a psychosomatic conference at Columbia University in New York City on Saturday, Oct. 20th. Columbia University will reward medical providers who come to hear Per ...

Meet with your MP about ME – Our Toolkit shows you how!

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Advocates at #MEAction UK are working hard to engage Members of Parliament in the fight for appropriate clinical care and investment in biomedical research for ME. Gaining MPs support in lobbying for change is vital to our success. So whether you are a person with ME, their carer, friend, family ...

Stop Per Fink from Spreading Misinformation about ME: Sign the Petition

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The Danish physician, Per Fink, is traveling to the United States to speak about his unscientific and dangerous idea that myalgic encephalomyelitis (ME) is a psychosomatic illness. Per Fink has been invited to speak at a psychosomatic conference at Columbia University in New York City on Oct. 20th. Columbia University will reward medical providers who come to hear Per Fink ...

Take the NYU Research Survey about your ME Experience

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I’m a researcher at NYU interested in the experiences of people with ME/CFS in the U.S ...

Sign Norway’s Petition: Demand Resignation of Advisory Board Promoting Biopsychosocial Model

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* Nina E. Steinkopf is a ME patient activist and author of the blog www.melivet.com. The petition is addressed to the Norwegian Ministry of Health and Care Services and below is an English translation – for our international supporters. Everyone is encouraged to sign the petition. The management for the National Advisory Unit on ...
Individuals who were lied to and misrepresented by Netflix’s Afflicted include (left to right): Jake, Pilar, Jamison, Jake & Bekah, Jill & Janine

Open Letter Demands Removal of Netflix’s “Afflicted” – Sign the Petition

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On September 18th, more than 40 writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request that Afflicted be immediately removed from the service. "We are deeply concerned about its unethical treatment of its subjects and its many factual errors and omissions," states ...

How To Protest HHS with #MEAction

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We will protest the U.S. Department of Health and Human Service virtually, on social media, on Friday, Sept. 14th. We have canceled the in-person protest in Washington, D.C. due to the fact that a hurricane is headed for that area on Thursday. We will reschedule the Washington, D.C. protest for a later date ...

Will the FDA Stand in the Way of Your ME Treatment? Take Action now!

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Suppose there was a substance that could help you, but before you learned about it, or you could find a doctor to prescribe it, the FDA banned it from the market, even though patients have successfully used it for decades. Or suppose there was a treatment that had helped your ...

Do you use a wheelchair? A team of engineers needs your input.

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The UC San Diego Smart WheelChair team is asking ME patients to fill out a short google questioner about how ME impacts their mobility and how they can best design a wheelchair accessory that would support your independence.  The team of undergraduate engineering students are working to design an affordable, open ...