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Browse Actions: Arts & Letters

#MEAction plans virtual concert for May 6th: Submit your Art

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Whether you are a musician, poet or puppeteer, expressing yourself through a body devastated by Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) is suddenly an impossible feat - and an improbable opportunity. #MEAction is excited to announce the launch of a virtual concert called #Bedfest on May 6th to showcase ...

Three ways to help Unrest change the story

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1) Sign up Sign-up to receive Unrest email updates, so you know when the film is coming to a city near you, your family, or your friends! Help us use the film to create a circle of allies, build the movement to fight for equal treatment, and find a cure. 2) Get social Join the ...

Send TGIF Letters to Francis Collins

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Friday Letters to Francis Collins ...

#MillionsMissing Crafts Competition

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#MillionsMissing Crafts Competition We want to have fun while we work for equal treatment for ME sufferers! Win prizes! Submit photos and pattern of a crochet - or knitting project with the #MillionMissing logo. ( Also with a picture of the finished product). We pick three winners receiving a prize ...
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Join the ‘Patient uprising from our beds’: Melbourne MillionsMissing on 12 October

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Melbourne's MillionsMissing will be on the steps of Parliament House, Spring St, Melbourne, from 1pm to 2pm on Wednesday 12 October 2016 ...

Attend the IACFS/ME conference this month

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Where does rituximab fit in among the treatment options for ME/CFS? What is the US government's research plan? How can I increase the chances my disability application will be or continue to be approved? What medications can I try for fibromyalgia now that morphine and related prescriptions are restricted?   Come to our international scientific ...

Visit the new #MillionsMissing website!

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Ever since the #MillionsMissing protests in May, volunteers have been working on a new site design for #MillionsMissing, and we are pleased to announce that it has just launched. The new site is the work of professional designers and programmers who have generously donated their time to make this happen, as ...

Urgent: Take part in the US Congressional Call to Action

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#MEAction reported recently that the #MillionsMissing protests led to a number of meetings with government officials, including a meeting with Assistant Secretary for Health and Human Services Karen DeSalvo, and several meetings with congressional representatives. Continued work from the Congressional team at #MEAction has yielded fruit. We are proud to announce that ...

Sign the e-card for Alem Matthees!

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The name of Australian patient Alem Matthees has become familiar in the last few days since a tribunal ruled that Queen Mary University of London (QMUL) must release to him the anonymised raw data from the PACE trial. Matthees requested in March 2014 under the Freedom of Information Act. The decision ...

Contribute clips to L.A.’s #MillionsMissing Video

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Last October, I released the short documentary The Last Great Medical Cover Up to a widely receptive audience. Now, I am looking to alter and expand the film in time to promote Round 2 of the groundbreaking #MillionsMissing movement. And I need your help to make this new and improved ...