I’m angry, but I’m not alone. Hi, my name is Ben HsuBorger, Director of Global Community and Campaigns for #MEAction, and I’m a person living with myalgic encephalomyelitis for over 14 years. I’m deeply grateful for the community and tribe I’ve found at #MEAction that remind me I’m not alone — and I want to
I am so honored to work with the #MEAction community on a daily basis. Our organization is fighting hard everyday to communicate the truth about myalgic encephalomyelitis (ME) – to shout it out loud and clear – to the world. My role as the #MEAction Editor & Communications Manager is to support, guide and spearhead
I’m Hannah Bowlus and I’m the administrative assistant at #MEAction. I take care of basic things like mailing t-shirts, archiving and scheduling calls. I talk with a lot of you. The more I get to know this community the more urgent and vital our work feels. I get to see everything that’s going on
People with ME are an incredibly science-literate patient population, even if that isn’t by choice: it’s the gaps in research and clinical care that have made us experts by necessity. Many of us eagerly participate in studies and engage in science discussions online. We regularly present our clinicians with new information! We understand better than
As the U.S. Advocacy Manager for #MEAction, I have the great pleasure of connecting fully to my life’s purpose: to be part of igniting the fire for change in the world. While it took me a while to determine that purpose, this truth has always been a driving force in my life. From a young
I am delighted to be part of the series in which you are getting to know the #MEAction staff! My name is Espe and I am #MEAction’s UK Coordinator. I am so honoured to be a part of the staff at #MEAction. I came to #MEAction via Unrest, as I was working on the impact
It is an honor to volunteer and work for #MEAction. #MEAction came to me at a time in my illness when I was finally able to be online, do advocacy work, and find community. To understand why #MEAction’s mission and approach to activism is so important to me, we need to go back to my
Meet the #MEAction Staff! Over the next couple of weeks, the staff at #MEAction will be sharing their experiences and insights into what they do and what brings them to this work. I am so thankful for this opportunity for you all to get to know this amazing group of people. They are so ready
