Chronic Fatigue Syndrome Archives

Lift Your Voice, Share Your Story – BHC Patient Voice

July 4, 2016 No Comments

Patient Voice – a special place online for members of our community to share their stories, art poetry, photography and music. We highlight the strength, joy, humor and beauty that can be found in a life changed by ME/CFS. Our goal is to lift your voice a little higher and help your story be heard loud and clear. Topic for June/July : “Tell us about a time when someone showed you unexpected kindness and it had a positive impact on you as you manage your chronic illness” Make Your Submission!

Introducing the Bateman Horne Center Online Patient Library

June 22, 2016 1 Comment

A collection of publications, videos, posts and links to other online resources helpful to those living with ME/CFS and Fibromyalgia.

Listen to Jarred Younger's CDC conference call this Thursday

June 21, 2016 1 Comment

The latest of the US Centers for Disease Control’s (CDC’s) Patient-Centered Outreach and Communication Activity (PCOCA) telephone conference calls for ME/CFS will take place on Thursday, June 23, and will feature Dr. Jarred Younger. His talk, which will begin at 3:15 pm EDT (Eastern Daylight Time), is titled, “Current and Future Research on ME/CFS Treatments

Join the #MillionsMissing this Sept — Bigger. Louder. Stronger.

June 21, 2016 5 Comments

On May 25, 2016, we did something extraordinary together: we held the largest, loudest protest ever held for ME/CFS. We came out in force: in Boston, Dallas, San Francisco, Seattle, Washington D.C., Raleigh, and Atlanta; in London; in Melbourne; in a Canada-wide virtual protest; in Bergen, Norway; and in Belfast, Northern Ireland. Impromptu shoe displays

N. Ireland: Chasing Competent Care and #MillionsMissing protest

June 20, 2016 2 Comments

Hope 4 ME & Fibro Northern Ireland ran an ambitious and exciting conference on Monday 6th June in The Stormont Hotel, Belfast. The conference, “Chasing Competent Care” delivered a strong message calling for change to the currently inadequate care situation for ME and fibromyalgia patients in Northern Ireland.

New ME/CFS Book: Lighting Up a Hidden World

June 16, 2016 7 Comments

This month, Valerie Free’s new book, Lighting Up a Hidden World: CFS and ME will be released to the public. In 1990, Valerie Free was a vibrant, thirty-year-old woman: a court stenographer, wife, and mother. In July of that year, she came down with a sudden, flu-like illness and after months of unrelenting and bizarre

$3.28 Million Awarded for ME/CFS Biomarker Study

June 12, 2016 2 Comments

Bateman Horne Center leadership, Drs. Bateman and Vernon, are Co-Investigators with Professor Derya Unutmaz, M.D. on this cutting-edge, 5 year immunogenomic study of ME/CFS that seeks to to develop robust, quantitative immune-biomarker sets for predicting disease susceptibility, stratifying patients and guiding treatment strategies.

Apply for NIH grants for early-stage investigators of ME/CFS

June 10, 2016 3 Comments

Yesterday, the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) announced that the NIH awarded them a R13 conference grant by the National Institutes of Health for their international conference in Fort Lauderdale, Florida, October 27 – 30, 2016. The grant will fund conference registration, travel and hotel expenses for up to 10 early stage

Top Medical Schools Teach Little about ME/CFS

June 8, 2016 8 Comments

Based on information from four medical schools, medical schools rarely address ME/CFS in basic instruction or as case studies. The University of North Carolina School of Medicine is ranked second in primary care in the 2017 U.S. News and World Report. Kurt Gilliland, PhD, is its assistant director of curriculum and evaluation. When interviewed, he

Canada – open letter to gov't from family of #MillionsMissing

June 7, 2016 4 Comments

Name/Nom: William A. Downey, BA, BSW Province: BC Riding/Circonscription: Kelowna Lake Country Comments/Commentaires: I am writing on behalf of over four hundred thousand fellow Canadian citizens whose lives have been, and will continue to be, devastated by the well-known biomedical condition Myalgic Encephalomyelitis (ME); I write as a member of the additional hundreds of thousands of Canadian citizens who

Tag: Chronic Fatigue Syndrome