Tag: Chronic Fatigue Syndrome

UK ME/CFS Biobank opens for business

Dr Charles Shepherd of the ME Association has announced that the UK’s ME/CFS Biobank is now ready to send blood samples to researchers anywhere in the world. The biobank is run by a team headed by Dr Luis Nacul at the London School of Hygiene and Tropical Medicine and forms part of the main University

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CFSAC May 17-18 meetings to be livestreamed

The spring meeting of the US CFS Advisory Committee (CFSAC) will take place on Tuesday May 17 and Wednesday May 18 from noon to 5pm (Eastern Time) and will be both livestreamed and available to listen to by telephone. The committee provides advice and recommendations to the Secretary of Health and Human Services (HHS) on

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Patient-friendly version of Edwards et al.'s assessment of ME/CFS research

ME/CFS patient and science blogger Simon McGrath has produced a patient-friendly version of a recent peer-reviewed editorial on the disease that appeared in the science journal Fatigue: Biomedicine, Health & Behavior. The article, titled The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem, became Fatigue’s most-read paper ever within a week of publication, with over 3700 views as

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UNSW tests graded exercise on mild CFS patients

Australia’s University of NSW’s Psychiatry Department tested a graded activity program on 25 patients with chronic fatigue syndrome. Before the study, patients could complete around 4 hours of ‘moderate intensity exercise’ a week (self-reported). It was not measured or recorded at the end of the program but the study found small improvements in cognitive performance, with some caveats.

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Jason study compares housebound and non-housebound patients

A new study was published recently in the journal Chronic Illness, entitled Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndrome by Pendergrast et al.  The authors of the paper included the well-known ME/CFS researchers Julia L. Newton and Leonard Jason.  Newton is most often recognized for her studies in muscular function in

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Add the Filter your profile pic for #MillionsMissing

Introducing the #MillionsMissing Profile Filter App!  This app was designed to help raise awareness for the millions of people living with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). It lets you add a special theme to any picture you choose so that you can upload it to your social media profiles to show your

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Keep PACE out of WebMD and HealthDay

Web MD, the largest online publisher of news and information regarding health and well-being, has released its “latest news” about ME/CFS in an article based on the discredited PACE trials. It asserts that “British researchers concluded that a form of talk therapy, called cognitive behavior therapy, and graded exercise therapy are among the best treatments for chronic fatigue.”

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