#MEAction giving season


Amount raised

$8628.80 (£6443.79)

time until the end of the year

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Start a fundraiser for #MEAction

Mobilize your friends and family to support our #MEAction community and our global movement for recognition, education and research for people with Myalgic Encephalomyelitis (ME). Share your story and invite loved ones to join your fundraiser.

We have two ways for you to start a fundraiser: you can fundraise on Facebook or you can reach out to us about hosting an individual fundraiser on our website. Below, we’ve got some sample language to help you craft your own fundraising pitch!


Insert your story here. Share how ME has impacted your life.

That’s why I am fighting to improve the lives of people with myalgic encephalomyelitis (ME), commonly called chronic fatigue syndrome. ME is a debilitating disease that affects the brain and immune system. It impacts over 1 million people of all ethnicities, ages, and genders in the US, 250,000 in the UK, and 15-30 million around the world. There are no FDA-approved treatments and many are left, homebound or bedridden, without any access to medical care.

Since the majority of ME cases begin following an acute infection, experts worry that COVID-19 will trigger a wave of new ME cases, potentially affecting millions. In a town-hall meeting, US National Institutes of Health (NIH) infectious disease expert Dr. Anthony Fauci said, “…a considerable number of [long COVID] individuals have a post-viral syndrome that… is highly suggestive of myalgic encephalomyelitis and chronic fatigue syndrome.”

Prospective studies of several different pathogens found that 10-12% of those infected met ME criteria six months after their infection. We also know from past outbreaks that coronaviruses like SARS may have even higher rates of triggering the disease. If that holds true for SARS-CoV-2, millions more around the world could develop ME following COVID-19 within the next two years. That is why supporting #MEAction now is so important!

#MEAction is an organization close to my heart that fights for recognition, medical education and research for people living with ME. Your contributions help support a global community of over 30,000 people with ME and their caregivers, leaders, volunteers, and participants. Together, we are working to raise awareness, educate medical doctors, grow the scientific field, and build a thriving community of support and friendship.

I hope you will join me! Thank you so much for your support!

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