#MEAction ME/CFS Research Summary – Full Summary
#MEAction ME/CFS Research Summary – Highlights
Understanding Post-Exertional Malaise
#MEAction congressional One-Pager – presents facts about ME/CFS and why US health authorities should fund it at a level commensurate with disease burden
Prevalence spreadsheet that shows the number of people in your state with ME
Disease burden of ME/CFS – based on research paper by Dimmock, Mirin & Jason
Talking points on ME
#MillionsMissing Fact Sheet
The Institute of Medicine 2015 report on ME/CFS – a good summary of the research. Also searchable for information on a specific topic.
“The Voice of the Patient,” a report on people with ME and CFS by the FDA.
Scottish Good Practice Statement on ME-CFS – this set of guidelines informs doctors of the potential adverse effects of graded exercise and the use of cognitive behavioral therapy not as a cure but as a coping tool, similar to other chronic illnesses.
Documentaries: Unrest | Forgotten Plague | Voices from the Shadows | I Remember ME
Short educational video content: #MEAction playlist | TED Talk
Advocacy videos: Activist teach-ins
Radio: TED Radio Hour | Science Friday
Thirty Years of Disdain: How HHS Buried ME by Mary Dimmock and Matthew Lazell-Fairman