“What makes activism work is [patients’] anger and fear…somehow you have to be able to capture that, put it in a bottle and bottle it and use it.” Larry Kramer The following comes from a report produced by HCM strategists, a public policy advocacy consulting firm: “Back to Basics: HIV/AIDS as a Model for Catalyzing Change.” What
Compare real sufferers of FM, CFS and MCS to models who ‘portray’ these illnesses for magazines and articles on the net is very easy (and sad)
Contact your Congressional Delegation – Share Llewellyn King’s article and ask them to speak up for ME/CFS Please find your Congressional delegation by typing your zip code, then copy and paste the following text into the contact forms. [button_color url=”http://www.contactingthecongress.org” content=”Contact your Congressional Delegation” target=””] Attention: Legislative Assistant for Health Please read the following article
ME/CFS Illness Management Survey Results “No Decisions about me without me” The ME Association just released the results of a patient survey taken in 2012 that covered management and self-management courses commonly offered to patients with Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, or Post-viral Fatigue Syndrome. The report (available in full on the ME Association website)
