7 Reasons for Why It’s #TimeForUnrest
October 1, 2017
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The #TimeForUnrest campaign has officially kicked off, and these are some of my reasons for for why it’s #TimeForUnrest.
1. People are dying.
Search Results for: PACE – Page 32
Breaking News: NIH Announces Results of ME/CFS Program Awards
September 29, 2017
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The National Institutes of Health (NIH) announced today the outcome of its ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) competitive consortium grants, marking an unprecedented and tangible commitment from the federal agency to the disease. The NIH announced four recipient teams; one Data Management Coordination Center (DMCC) and three Collaborative Research Centers (CRCs).
Finding Connection within M.E.
September 14, 2017
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During the initial years of having Myalgic Encephalomyelitis (ME), it is common to watch all your interpersonal ties slowly dissolve. Being in my early 20s, those around me craved excitement, adventure, and new experiences. Those things I desired too, but little of which I could do or offer in my current state of health.
Hosting a Screening of Unrest? Learn How to Talk to the Press
September 10, 2017
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If you are hosting a screening of Unrest in your community, you will want to reach out to your local press about covering the screening. Below are some training resources to help you prepare to speak to the media. These tools were developed by #MEAction for the #MillionsMissing Day of Action in Sept. 2017 in
Transitioning from an Abled Life
August 21, 2017
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When a sudden and unexpected illness catapulted my life into a completely different path, life as I had come to know it, was irrevocably changed.
Ron Davis Gets Standing Ovation
August 18, 2017
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August 12 was an amazing day at OMF’s Community Symposium on the Molecular Basis of ME/CFS at Stanford University.
NICE 2017 response
July 23, 2017
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10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy) (2007) NICE guideline CG53 Stakeholder consultation comments form – proposal for ‘no update’ Consultation on the proposal for ‘no update’ opens on: 9am Monday, 10 July 2017 Comments on proposal to be submitted: no later than 9am Monday, 24 July 2017 Organisation name
Action for M.E announces research
July 17, 2017
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UK charity Action for M.E has announced that they are funding two new research studies, totalling £42,000
State Resolution for ME: How-to Guide and Case Study
May 24, 2017
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Rivka Solomon and Mary Dimmock contributed to this article This document includes the steps ME advocates are taking to get a State Resolution for ME passed in their State House (aka State Assembly or State Legislature). It also includes a draft template of a resolution for you to use in your state. Why pursue a state
Julie Rehmeyer’s memoir is out. Purchase her book today!
May 19, 2017
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“I read an early version of Through the Shadowlands while I was driving around the country, tent in my rental car, terrified that something inexplicable was wrong with me, convinced that I was losing my mind. Julie Rehmeyer’s book showed me that I wasn’t.