#MEAction is thrilled, once again, to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga to provide a 30 minute, virtual very modified movement class on Thursday, Feb 8th at 11am PT/2pm ET/7pm GMT that has been crafted specifically for people with ME. The whole class will be lying down and can be done from bed.
As many of you know, we lost a wonderful person recently. Beth Mazur passed away after battling ME for 15 years. She was the cofounder of #MEAction and a selfless beacon of hope and light for so many in our community. She demonstrated an unwavering commitment to the cause. We could not be more devastated.
#MEAction’s 2023 Bold Action Campaign DONATE 100% 100% Amount raised $95,1 (￡75,037) time until the end of the year Days Hours Minutes Support #MEAction’s 2023 Bold Action Campaign. Our goal: $100,000 (￡81,699) by December 31st. DONATE #MEAction prides itself on being an activism first organization. From the protests around the world, to the displays of
#MEAction’s 2023 BOLD ACTION Campaign DONATE Start a letter writing campaign Reach out to your friends and family and share your story. Ask them to support our global movement for BOLD ACTION to bring recognition, education and research for people with Myalgic Encephalomyelitis (ME). You can: Start an Individual Fundraiser Send an email Send a text
Medical education resources on ME Thank you for taking an interest in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This page brings together a range of resources to help you keep up-to-date on the latest recommendations and support your patients. CPD Module and Podcast: Learn About ME This free, CPD-accredited learning module aims to support GPs and
#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) to offer creative writing workshops for people with ME and Long COVID**. WGI has graciously donated their time to offer these writer workshops through personal mentorship with the writers of the #MEAction community! The workshops consist of three sessions during the
The National Institutes of Health (NIH) announced they will designate people with disabilities as a population with health disparities. This is a win that could have a large impact on people with ME and the millions of people with disabilities across the country. “This designation recognizes the importance and need for research advances to improve
#MEAction is thrilled to share the incredible work our State Chapters have been up to over the past couple of months! They continue to amaze us daily with their dedication and hard work to bring awareness to the ME community. Read more about their success stories: California: The University of California has added some disclaimers
MEAction UK have been in communication with the BMJ and are delighted to announce that the Journal of Neurology, Neurosurgery & Psychiatry (JNNP) are publishing an edited version of our rapid response to ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’. We
#MEAction and Long COVID Justice issued a press statement yesterday about our communities’ deep concerns regarding the rollout of RECOVER’s clinical trials for Long COVID. As studies show half of the Long COVID community meets the diagnostic criteria for ME/CFS – and our core symptoms overlap – RECOVER’s research has major implications for our community.
