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Cochrane Temporarily Removes Review of "Exercise Therapy for CFS"

October 27, 2018 4 Comments

Cochrane has temporarily removed a review from its database that claims exercise therapy is effective for chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME). Cochrane is a database of medical reviews and meta-analyses, which medical providers around the world rely on for diagnosing and treating disease. Their review, Exercise Therapy for Chronic Fatigue Syndrome, covers

Enrolling: Cornell Exercise Testing Study

August 17, 2018 No Comments

Who: Cornell Center for Enervating Neuroimmune Disease What: The Center is collecting information from both ME patients and sedentary controls. You will first have a quick phone call to determine eligibility. If eligible, you will meet with a doctor (theirs or yours) to be examined or for blood and urine tests. Then you will complete questionnaires. Finally, you

UNSW tests graded exercise on mild CFS patients

May 11, 2016 2 Comments

Australia’s University of NSW’s Psychiatry Department tested a graded activity program on 25 patients with chronic fatigue syndrome. Before the study, patients could complete around 4 hours of ‘moderate intensity exercise’ a week (self-reported). It was not measured or recorded at the end of the program but the study found small improvements in cognitive performance, with some caveats.

Rehmeyer and Tuller: PACE trial didn’t prove graded exercise safe for CFS

January 7, 2016 No Comments

Journalists Julie Rehmeyer and Dr. David Tuller have published an analysis concluding that the PACE trial failed to demonstrate the safety of graded exercise therapy, despite its authors claiming that it was a safe treatment for patients with chronic fatigue syndrome (CFS). Their article, on Virology Blog, concludes that “the PACE researchers’ attempts to prove

#MEAction’s NIH Study Response

February 29, 2024 5 Comments

NIH’s recent paper on ME/CFS elicited strong reactions from the community.

#MEAction Is Offering A Very Modified Movement Class

January 25, 2024 No Comments

#MEAction is thrilled, once again, to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga to provide a 30 minute, virtual very modified movement class on Thursday, Feb 8th at 11am PT/2pm ET/7pm GMT that has been crafted specifically for people with ME. The whole class will be lying down and can be done from bed.

Beth Mazur — Memorial Service and Obituary

January 10, 2024 16 Comments

As many of you know, we lost a wonderful person recently. Beth Mazur passed away after battling ME for 15 years. She was the cofounder of #MEAction and a selfless beacon of hope and light for so many in our community. She demonstrated an unwavering commitment to the cause. We could not be more devastated.

#MEAction’s BOLD ACTION Campaign 2023

October 23, 2023 No Comments

#MEAction’s 2023 Bold Action Campaign DONATE 100% 100% Amount raised $95,1 (￡75,037) time until the end of the year Days Hours Minutes Support #MEAction’s 2023 Bold Action Campaign. Our goal: $100,000 (￡81,699) by December 31st. DONATE #MEAction prides itself on being an activism first organization. From the protests around the world, to the displays of

Send a letter to support #MEAction’s 2023 BOLD ACTION Campaign

October 16, 2023 No Comments

#MEAction’s 2023 BOLD ACTION Campaign DONATE Start a letter writing campaign Reach out to your friends and family and share your story. Ask them to support our global movement for BOLD ACTION to bring recognition, education and research for people with Myalgic Encephalomyelitis (ME). You can: Start an Individual Fundraiser Send an email Send a text

Medical education resources on ME

October 13, 2023 No Comments

Medical education resources on ME Thank you for taking an interest in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This page brings together a range of resources to help you keep up-to-date on the latest recommendations and support your patients. CPD Module and Podcast: Learn About ME This free, CPD-accredited learning module aims to support GPs and

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