×

Browse News: United States

U.S School Nurses, Teachers & Counselors can now take Continuing Education Course about Pediatric ME/CFS

/ by / 0 Comment
School nurses, counselors, social workers or teachers in any U.S. state can now earn earn 3.25 Continuing Education credits (CNE) for completing a course on pediatric myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The course is titled, "“Why Can’t This Child Get to Class? Learn How ME/CFS Keeps Youth from Attending School." The course ...

#MEAction Responds to Attacks on ME Community in The Guardian and Psychology Today

/ by / 4 Comments
In the past two weeks, The Observer and Psychology Today US have published articles portraying the myalgic encephalomyelitis (ME) community as an angry, misguided mob using social media to denigrate scientific research. Both articles focus on the criticism that Dr. Michael Sharpe, one of the key authors of the PACE trial ...

#MEAction Seeks Applicants for Blue Ribbon Fellowship at Bateman Horne Center

/ by / 2 Comments
Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical students, med-peds, internal medicine and family practice residents. We are delighted to announce the #MEAction Blue Ribbon fellowship at the Bateman Horne Center (BHC) with Dr. Lucinda Bateman. The clerkship/rotation will consist of one ...

#MEAction Launches its U.S. State Chapter Initiative

/ by / 0 Comment
We’re so excited to announce we’re growing our community’s impact through the expansion of #MEAction USA’s formal State Chapters.  #MEAction USA’s State Chapters build local capacity around volunteer engagement, congressional outreach, local and state advocacy, and medical education, and support awareness raising efforts for ME. State chapters also act as laboratories ...

Congressman Jack Bergman becomes Champion for ME!

/ by / 2 Comments
Up with the Marines! We are so pleased that Congressman Jack Bergman (R, MI-1), a former Marine general, has become a champion for people with myalgic encephalomyelitis (ME). Michigan advocates led by Lori Chapo-Kroger, RN, president of Pandora Org, and supported by the #MEAction Congressional team, did a video conference ...

Jaime Seltzer: Science Makes the Impact

/ by / 0 Comment
People with ME are an incredibly science-literate patient population, even if that isn’t by choice: it’s the gaps in research and clinical care that have made us experts by necessity. Many of us eagerly participate in studies and engage in science discussions online. We regularly present our clinicians with new ...

We need Effective, Strategic, and Respectful Engagement from CDC

/ by / 2 Comments
On June 3rd the CDC held its latest MECFS Stakeholder Engagement and Communication (SEC) Webinar/Conference Call with the ME community. The need for change in the CDC’s stakeholder engagement meetings has been a long time coming. However, this Monday, the majority of the call was a presentation comprised of simple ...

Historic Congressional Resolution Passes for ME!

/ by / 0 Comment
Senate Resolution passed! This is a great victory for all people with ME ...

Read #MEAction’s Request for Information response to the NIH

/ by / 0 Comment
The story so far NINDS, the National Institute for Neurological Disorder and Stroke at the NIH has solicited an RFI, or a Request for Information, from the ME community on how to advance research for myalgic encephalomyelitis.   With only a few weeks’ turn-around, the #MEAction NIH working group produced a compelling response based on ...

South Carolina Raises Awareness about ME

/ by / 0 Comment
My name is Robert Jacobs, MD and I am a retired Physician and caregiver for my wife who has had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for more than 9 years. Despite the historical, tourism and quality-of-life allure of this beautiful state, we discovered a paucity of medical care available to patients with ME/CFS, ...