The demonstration has kicked off yesterday June 1st, with a great start, at the Justice Department in Washington DC. The aim of this demonstration is to "occupy" as long as possible. Their permit is valid till July 4. Some demonstrators plan to stay a week. Others will try to stay
Tom Whittingham, running for his sister and ME Research UK
Tom ran the Edinburgh marathon on May 31st as a personal challenge and a way to raise awareness and funds for Myalgic Encephalomyelitis research. Why did he do this? In his own words,
"My sister Naomi has suffered from ME for over
It's rare that new research means rewriting textbooks. But new information discovered by University of Virginia School of Medicine researchers might do just that for neuroscience, immunology, and even anatomy. This discovery also has definite implications for the diagnosis and treatment of neuroimmune conditions like Myalgic Encephalomyelitis (Chronic Fatigue Syndrome).
ME/CFS Illness Management Survey Results
"No Decisions about me without me"
The ME Association just released the results of a patient survey taken in 2012 that covered management and self-management courses commonly offered to patients with Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, or Post-viral Fatigue Syndrome. The report (available in full on the
The Open Medicine Foundation's big data study on severely ill patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is an exciting new project designed to uncover biomarkers by studying the sickest of the sick. Want to learn more? Your pressing questions about the study are answered below.
How long will it take to
Could new cytokine research be paving the way to a diagnostic test for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome?
Excerpted from Columbia Magazine - Spring issue:
As many as four million Americans are thought to suffer from chronic fatigue syndrome, a disease characterized by symptoms that include persistent lethargy, headaches, muscle pain, mental fogginess,
May 12th is Awareness Day for ME, Fibromyalgia, Lyme Disease, Chronic Fatigue Syndrome and Multiple Chemical Sensitivity.
Every year bloggers use this opportunity to express their views and to raise the profile of these often misunderstood and maligned conditions. A call was put out to bloggers to participate in a
While ME awareness day does not garner the attention that other illness do, patients and advocates are working hard to bring light to the issues. EmpowerHer summarizes the inspiring actions and events that took place this year:
Monuments were lit up around the world including Peace Bridge in the United States, and
New potential cause of ME found.
Research found that Important signalling mechanisms are disrupted with receptors in the brain, gut, cardiovascular and immune systems. Research findings will be presented at the end of May 2015.
The Brighton Wheel and the Brighton Sea Life Centre were lit up blue last night in support of ME Awareness. A group of ME Mums and Dad's held posters from Action for ME for photographs that will be published along with an article on ME in the Argus newspaper. The
Activists in Spain, after a new gag law curtailed the freedom to protest in front of Congress or parliament buildings, staged what may be the world's first hologram protest.
Holographic projection opens up a whole new world of possibilities for how to bring to the outside world the images, voices, and stories of patients who
A unique pattern of immune molecules in the cerebrospinal fluid of people with myalgic encephalomyelitis/chronic fatigue syndrome have been discovered, providing insights into the basis for cognitive dysfunction --frequently described by patients as 'brain fog'-- as well as new hope for improvements in diagnosis and treatment.
Read more here