Covid-19 Resources for People with ME

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Long COVID and ME/CFS: what’s the connection?


Dr. Anthony Fauci,
Director of the National Institute of Allergy and Infectious Diseases

“…a considerable number of individuals who have a post-viral syndrome that… can incapacitate them for weeks and weeks following so-called recovery…. They have [symptoms] that are highly suggestive of myalgic encephalomyelitis and chronic fatigue syndrome.”​


Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a neurological disease often initiated by a viral infectionME/CFS is not ‘fatigue’, but a complex chronic disease, with symptoms presenting in every body system.  While some COVID long haulers will recover, and others may be diagnosed with other conditions, researchers and expert clinicians say that a non-trivial percentage will go on to be diagnosed with ME. 

#MEAction will host a seminar for post-COVID-19 “long haulers” on Friday, August 7 at 11am PST, to learn more about ME/CFS as a potential diagnosis, in partnership with Body Politic and the COVID-19 Working Group New York.

The seminar will discuss:

  • symptom presentation and diagnosis of ME/CFS;
  • pacing and management strategies;
  • coping with a new chronic illness; and
  • advocating in your doctor’s office and beyond.

There will be a question-and-answer session where COVID “long haulers” can ask questions of any presenter. Each presenter will also offer up their most useful resource, creating a toolkit for attendees.

People with lived experience navigating the complex chronic illness space are invaluable resources in all diseases, but here more than most.  The opportunity to learn from experts of this caliber is rare, and the opportunity to learn about ME/CFS in the wake of COVID-19 is wholly unique.  We look forward to passing on our best information to smooth some of the struggles ahead – no matter your eventual diagnosis.


Be there as we make the space for these important conversations!


FRIDAY, AUGUST 7, 11AM PST


The seminar is now FULL

If you have registered, you should receive a link and a participant code shortly. If you unfortunately registered after the seminar was already full, you will receive a notice shortly. You may still:


Speakers:







The seminar is now FULL

If you have registered, you should receive a link and a participant code shortly. If you unfortunately registered after the seminar was already full, you will receive a notice shortly. You may still: