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August 2020
NIH Interagency ME/CFS Working Group Meeting
On Tuesday, August 11, the NIH will host the first meeting of the Interagency ME/CFS Working Group. #MEAction will participate in this meeting which will be livestreamed to the public. But the conversation doesn’t end here. Remember to also join us for a Wednesday, August 19 #MEAction Community Debrief. FROM NIH: The Interagency ME/CFS Working Group will hold its first meeting on August 11, 2020 from 3:00 – 5:00 pm ET. The meeting will be livestreamed on https://videocast.nih.gov/watch=38201 and will…
Find out more »#MEAction Arizona Meeting
Please join us for the monthly Arizona #MEAction organizing meeting. We meet the second Thursday of each month at 6:00 pm (MT). The purpose of the meeting is to form an Arizona coalition of people with ME and allies to organize actions, develop our strategy, and form a community! Arizona advocates, we need you there! This event is 100% online. Questions? Want to get more involved? Contact [email protected] CALL-IN DETAILS ------------------------- To join the Meeting: https://bluejeans.com/241851382 To join via phone…
Find out more »ME Caregiver Support Call
Please join us for the third Saturday of each month at 12 pm PT / 3 pm ET for our ME Caregiver Support Call. If you would like to be added to our email list and receive meeting info and updates, please email [email protected] Please use ME Caregiver Email List in the subject line. Join our Facebook group for more discussion. JOIN THE VIDEO CALL https://bluejeans.com/371271408 JOIN BY PHONE Meeting URL +1.408.317.9253 (US (Primary, San Jose)) (see all country…
Find out more »Soziales Gespräch für Deutschsprachige
Jeden dritten Sonntag im Monat um 17-18:30 Uhr MEZ findet ein deutschsprachiges virtuelles Gespräch statt, um sich mal sozial austauschen zu können. Es gibt drei Möglichkeiten teilzunehmen: 1) einfach auf bluejeans.com gehen, auf “Konferenz beitreten” klicken und den Konferenz-ID eingeben ohne was runterladen zu müssen 2) die Blue Jeans App auf Handy oder Komputer installieren und den Konferenz-ID eingeben (beides geht ohne Konto - man muss sich nicht anmelden; beides geht mit oder ohne Video) 3) die +49 322 2109…
Find out more »Community Debrief: NIH Interagency ME/CFS Working Group
Please join us on WEDNESDAY, AUGUST 19 at 3:00pm ET / 12:00pm PT On Tuesday, August 11, the NIH holds the first meeting of the Interagency ME/CFS Working Group. #MEAction will participate in this meeting which will be livestreamed to the public. But the conversation doesn’t end here. As we’ve said repeatedly, what matters is whether federal agencies like the NIH are delivering the urgently needed diagnostic biomarkers and treatments for people living with ME/CFS and long COVID. So we…
Find out more »#MEAction Georgia Support Call
Join #MEAction GA the 3rd Thursday of the month at 1pm EST for our monthly support call. All pw/ME are welcome and no previous attendance is needed. Topics will vary from month to month and no preparation is required. Come as you are for this virtual meeting! Please remember to mute yourself when not speaking to avoid background interference for those of us with sensitive ears. To do this, tap the mic icon or press *4 to mute and unmute…
Find out more »#MEAction California Monthly Call
Please join us for the monthly California #MEAction support and informational meeting. We meet the last Thursday of each month at 6:30 pm (PT). The purpose of the meeting is to bring together Californians who have ME, along with their family and friends, to discuss their concerns, let out their feelings, exchange information, and develop advocacy strategy. Especially in these times, many of us are at loose ends and welcome the support and companionship of our extended family. Even…
Find out more »#MEAction Colorado Monthly Planning Meeting
Everyone is welcome to join us for our monthly planning meeting and contribute or just listen in! We meet on the 4th Thursday of the month from 7 - 8:30 pm MT. RSVP Follow the link below to join via computer: Meeting URL https://bluejeans.com/487769672/ Meeting ID 487769672 Or, join by phone: Dial +1.408.317.9253 if you’re in the US +44.203.608.5256 for UK +61.2.8103.4256 for Australia Or click here for all international numbers When prompted, enter the meeting…
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September 2020
#MEAction Maryland- Monthly Advocacy Meetings
Please join us for our new monthly #MEAction Maryland Advocacy meeting! All people with ME/CFS, caregivers and allies are welcome. We meet on the first Tuesday of the month at 7:00 pm Eastern time. The agenda will change from month-to-month but open discussion is always encouraged and new-comers are welcome. The purpose of the meeting is to form a Maryland coalition of people with ME and allies to organize actions, develop our strategy, and form a community. The call will be…
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