#MEAction’s US Congress project involves a team of dedicated volunteers and staff and thousands of constituents who have been engaging in Congressional advocacy since the organization’s launch in 2015.
Mission & GOALS
#MEAction’s US Congress project involves a team of dedicated volunteers and staff and thousands of constituents working to achieve these goals.
*#MEAction typically uses the term myalgic encephalomyelitis but uses the term ME/CFS for Congressional communications. Congress is more familiar with the term ME/CFS, and it is also the wording used by national agencies (such as the NIH and CDC) with whom Congress interacts.
Congressional Advocacy Toolkit
Use our tools to “go deeper” into advocacy work, especially if you are getting ready to set up a meeting with a Congressional office. Each chapter has links to many other resources to help you prepare for a successful meeting! Read the toolkit.
History of Congressional Team
Our first tangible accomplishment was succeeding several times in restoring $5.4 million in ME/CFS funding for the Centers for Disease Control that had been proposed for elimination. Then, through many phone and in-person meetings with Congressional offices and “calls to action” for the community to contact their members’ offices, we have been able to accomplish the following actions. See timeline below.
#MEAction launches in January of 2015.
Letter to NIH
In 2016, we advocated for members of Congress to write a bipartisan letter to the NIH, signed by 55 Representatives.
Letters to Appropriations Committees
In 2016, 2017, and 2018, we fought for 130 members of Congress to write to the Appropriations Committees to request that ME/CFS directives be included in the appropriations bills.
Letter to Department of Health and Human Service
In 2018, we worked to secure a bipartisan letter to the Department of Health and Human Services calling for support for ME/CFS patients and research, signed by 42 Senators and Representatives.
On April 3rd, 178 attendees stormed the halls of Congress calling for change. Advocates held a total of 187 meetings with congressional offices!
We also provided tools for people at home to call their senators and advocate via social media.
Senate Resolution 225 Passed
In May 2019, a historic, bipartisan Senate Resolution, S.Res. 225, passed in honor of International ME/CFS Awareness Day.
House Resolution 399
In 2019, we worked with the House representatives to introduce a bipartisan House Resolution, H. Res. 399, recognizing International ME/CFS Awareness Day.
We currently have 18 Representatives who have signed on to the resolution and we are looking to get even more.