For researchers and clinicians

SHAPE Lab Tech(Oscar Ortiz) draws blood from a Army soldier(Karla Bayles).

For decades, patients living with ME and their caregivers have been denied equal or adequate investment in research or access to care. Fortunately, that is starting to change, but there is still so much work to do. To learn more about how you can get involved, browse the materials below.
Join a Facebook group:

#MEAction Doctors | #MEAction Nurses | #MEAction Researchers | View all groups

Subscribe to our quarterly newsletter:
  • Healthcare providers: receive occasional emails with research news, continuing medical education opportunities, conferences, and other ways you can support patients.
  • Researchers: receive occasional emails with research news, conferences, funding announcements and other opportunities to support the movement as a scientist or researcher
Researchers: now you can post recruitment for your active studies on meaction.net!

See our research participation page here.

Jump to the following:

Diagnosing & caring for patients
Conferences & organizations

Diagnosing and caring for patients

In 2015, the US Institute of Medicine created new diagnostic criteria to affirmatively diagnose ME. However, some patient advocates and researchers are concerned that these criteria may still be too broad, particularly if used to select human subjects for research.

Frequently used diagnostic criteria include the Canadian Consensus Criteria and the International Consensus Criteria.

While there are currently no FDA-approved treatments for ME, many patients can live a higher quality of life if they have access to a physician who can help them:

  • pace their activity
  • manage the symptoms of pain, unrefreshing sleep, and orthostatic intolerance
  • diagnose and treat common comorbidities

Learn more 


While research has lagged behind many other fields due to  low federal investment, the field is growing with the recent entry of new labs and growth in private and public support. Learn more about the current state of the field, attend a conference, or connect with an existing research group.

Conferences & organizations


Organizations with special interest for researchers

Research Groups


Organizations & Conferences


Organizations, Conferences, and Research Groups


Organizations & Conferences

More to come!