Category Archives: Politics

PACE Trial ‘medical scandal’ Sparks UK Parliament Debate

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Members of Parliament heard about the flaws of the PACE Trial - and its devastating effects on people with Myalgic Encephalomyelitis (ME) - in a Westminster Hall debate today. Twenty-six MPs attended the debate ...

What ME Activists Can Learn from the AIDS Crisis

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I read "How To Survive A Plague: The Inside Story of How Citizens and Science Tamed AIDS" by David France to learn lessons from the AIDS movement that could help ME activism, and to summarize it for people without the energy and/or time to read it. The book tells an ...
Volunteers on Radio Scotland

Volunteers on Radio Scotland

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Guest post by Emma Shorter Listen to MEAction volunteers on Radio Scotland! Available as an MP3 (7Mb) or stream via BBC iPlayer (starts at 36.23) On 14th of February 2018, my mum (Janet) and I were on Radio Scotland to discuss #MEAction’s Millions Missing campaign in Scotland. The piece was instigated after the Millions ...

What Did the Parliamentary Unrest Event Achieve?

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Tuesday 24th Oct., 2017 will long be remembered as a significant day for anyone involved in ME politics ...

#MEAction Launches First New York Organizing Meeting

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With the excitement and attention around the theatrical premiere of 'Unrest' in NYC this month now is the time to take ME advocacy and activism to a new level in New York. Over the past year there has been increasing progress at the state level. Last fall a #MillionsMissing protest was ...
Parliament EDM 271 Urges NICE to Update Guideline on ME

Parliament EDM 271 Urges NICE to Update Guideline on ME

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UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new guideline is robust enough to protect and help people with ME for generations to come ...

Tell Congress “Don’t defund ME/CFS!”

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Last week, the House Appropriations Subcommittee on Labor-HHS zeroed out the $5.4 million line item for Chronic Fatigue Syndrome at the CDC....again. Tell your members of congress to restore the funding for ME/CFS for next year’s budget. We cannot abandon the progress we've made so far! ...

Trifecta for ME awareness in Knoxville, Tennessee

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Trifecta in Knoxville, Tennessee In an example of Knoxville leading the way for Tennessee, Mayor Madeline Rogero and the Knoxville City Council have provided an ME/CFS Proclamation and Resolution in honor of May 12th, International ME/CFS Awareness Day. Supporting the global movement of lighting bridges and buildings in the ME blue ...

Letter to NIH: End the Insult

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A person with ME for more than 38 years wrote this pointed letter to the National Institute of Health, calling its leaders to act with urgency and correct their gross neglect of people suffering with ME ...

Epic Measures: How One Man Changed the World (and Possibly ME/CFS and FM As Well)

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Chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) have a long, long way to go before they get the attention and resources they deserve. It would take a heroic leap to quickly achieve what people with these diseases deserve and what the diseases themselves - given their economic costs / burdens ...
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