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Category Archives: Politics

Read the new parliamentary briefing

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Next Thursday, Parliament will hold a 3-hour Westminster Hall debate on Myalgic Encephalomyelitis treatment and research in a monumental victory for the ME community. In preparation for the debate, #MEAction UK volunteers prepared a parliamentary briefing along with three other charities - ME Association, Action for M.E., and the ME ...

UK: Urge your MP to attend the 21st June debate on ME

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A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m. We need to encourage as many of our MPs as possible to attend. Contacting your MP has never been easier with this new tool. Simply enter your postcode below ...

#MEAction Scotland Speaks at Scottish Parliament Petitions Committee – Watch the Video

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#MEAction Scotland appeared before the Scottish Parliament Petitions Committee on June 7th to give evidence on its petition to review treatment of ME patients in Scotland.  Watch the hearing: Not all petitioners are called before the Parliament’s Petitions Committee, so the fact that #MEAction Scotland has been summoned is very encouraging. The petition has received 7,000 ...

Learn More About the UK Parliamentary Briefing

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A key briefing to help parliamentarians understand the issues facing people affected by M.E. has been co-authored by #MEAction UK, the ME Association, Action for M.E., and the ME Trust. Read the Parliamentary briefing.  Our collaboration on this was prompted by a discussion with the UK team responsible for the impact ...

UK MPS Secure Westminster Hall Debate on ME

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Mark your calendars! A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m. The fight for a larger debate on ME has had cross party support with Carol Monaghan MP securing the debate, along with the support of five other ...

MPs Fight for House of Commons debate on ME in UK

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MPs across the parties in the U.K. came together today to argue the case for scheduling a debate about Myalgic Encephalomyelitis (ME) in the main chamber of the House of Commons. Watch the video below. Carol Monaghan MP joined five other MPs on June 5th to argue the merits of holding ...

Scottish Action – Urge your MSP to Support Petition for ME

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by Kim Gurav and Susan Cole #MEAction Scotland volunteers have been called before the Scottish Parliament’s Petitions Committee on Thursday, 7th June to give evidence on their petition to review treatment of ME patients in Scotland. The petition has received 7,000 signatures, and calls on the Scottish Government to invest in ...

How Much Does the UK Dept. of Health Spend on ME?

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MP Carol Monaghan (Glasgow North West) had asked the UK Secretary of State for Health and Social Care how much it plans to allocate to biomedical research for Myalgic Encephalomyelitis in the current financial year?  In quotations below is the response from the Minister of State at the Department of Health and Social Care, Caroline Dinenage ...

Who is advising the Australian government on ME and CFS research and treatment guidelines?

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Australian research is underfunded and the government’s clinical guidelines are outdated so the Australian government's ME and CFS advisory committee is welcomed. It provides an important opportunity to call on the government to fund biomedical research and to give Australian doctors desperately needed clinical guidance. However, there are mixed perspectives ...

UK Call to Action: Ask Your MP To Sign EDM 1247!

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  If you are in the UK, please email your MP asking them to sign Early Day Motion 1247. What is an EDM? Early day motions (EDMs) are motions submitted for debate in the House of Commons for which no day has been fixed. As there is no specific time allocated to EDMs very ...